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Jan 30
FX Ambassador - Olia Hercules
We are delighted to share with you the news that Olia Hercules has agreed to become an Ambassador for the Fragile X Society. Olia is a...
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Jan 23
Fragile X Syndrome: What you need to know about this rare genetic condition
Flo Read, a Research Assistant at the School of Biomedical Sciences, interviews Dr. Marine Krzisch regarding Fragile X syndrome and...
82 views

Jan 21
Touch FX
Patrick Wild Centre are looking for volunteers with full mutation fragile X syndrome (aged 3-45) to join their study that aims to better...
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Dec 11, 2024
Eddie & Ciara Fundraising
Eddie and Ciara successfully finished the Winter Milton Keynes half marathon. Despite the terrible weather, Eddie completed the race with...
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Dec 11, 2024
Leeds University Visit
A couple of weeks ago Pete Richardson, Managing Director, was privileged to be able to deliver a presentation on Fragile X to the Leeds...
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Nov 26, 2024
The Charity Stewards Meeting
During the Charity Stewards’ Lodge meeting at Chingford Masonic Hall on November 6th, Pete was thrilled to present on Fragile X to an...
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Nov 14, 2024
Tips for the festive season:
With Christmas approaching, we can see many changes around us. From decorations and lights appearing, to Christmas foods and gifts in the...
28 views


Nov 14, 2024
What are the challenges of developing independence and supporting the quality of life of adult males affected by Fragile X Syndrome? Cardiff University
What are the challenges of developing independence and supporting the quality of life of adult males affected by Fragile X Syndrome? I...
146 views


Nov 13, 2024
Black Friday Appeal
Please donate generously to us on Black Friday!!! https://www.fragilex.org.uk/make-a-donation Let’s be honest no one needs reindeer...
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Nov 12, 2024
Eddie's fundraiser for The Fragile X Society
We received a lovely story from Ciara and Eddie. They are both taking part in the Milton Keynes Winter Half Marathon to raise awareness...
69 views
Nov 6, 2024
Stephens Fundraising for FXS
We would like to say a massive thank you to Stephen, Keith and Milo. Stephen who has Fragile X syndrome, decided he would love to raise...
64 views

Oct 30, 2024
Anti-Bullying Week: 11 – 15th November 2024
Alison Field, Families and Professionals Advisor (Child Enquiries) shares some information about this year's Anti-Bullying Week: I hope...
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Oct 29, 2024
Adam's fundraiser for The Fragile X Society
Thank you to Adam, who has kindly chosen to fundraise for the Fragile X Society. Adam chose to support the Society due to his nephew...
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Oct 23, 2024
Media Training Day
For Fragile X Awareness day on the 10th of October 2024. Our aim was to create as much publicity and raise as much awareness of Fragile X...
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Oct 22, 2024
Experience of Navigating Autism Assessment
The University of Surrey is currently conducting a research study that aims to explore the experiences of parents and carers who have...
54 views


Oct 10, 2024
Interview with Olia Hercules
Fragile X Awareness Day - 10/10/24 This year, the main feature for our Fragile X Awareness Day, is an interview between Pete Richardson...
546 views

Oct 3, 2024
Fragile X Awareness Day 10/10/24
To help raise awareness, we are asking people if they could kindly either update their Facebook profile or cover picture with the Fragile...
176 views


Sep 26, 2024
Michael Runs The Great North Run
Last month we received a lovely story from one of our members Michael, who was taking part in The Great North run, to raise awareness and...
79 views

Sep 26, 2024
SleepWISE study
This research projects aims to understand what factors predict the type and pattern of sleep problems that children with...
29 views
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