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    • Home

    • About Fragile X

      • Fragile X and Autism
      • Diagnosis
      • Genetic Testing
      • Carriers
      • Personal Stories
      • Resources
    • Help & Support

      • Membership
      • Snippets of Advice Blog
      • Case Studies
      • Events
      • Family Weekend at Thomley 2022
      • Feedback
    • Get Involved

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      Luke and Jas's marathon week for Fragile X
      • 11 hours ago

      Luke and Jas's marathon week for Fragile X

      Luke Atterbury and friend, Jas, have recently tackled not one, but two, challenges in aid of the Fragile X Society
      2 views
      Mencap's Big Learning Disability Survey
      • May 19

      Mencap's Big Learning Disability Survey

      Mencap would like to invite people with a learning disability to take part in their 2022 Big Learning Disability Survey! Have your say:
      14 views
      Jonathan and Darcy run the Oxford Town and Gown
      • May 19

      Jonathan and Darcy run the Oxford Town and Gown

      Father and daughter team run 10k race in aid of Fragile X Society
      11 views
      Kunal's holiday to Dubai
      • May 19

      Kunal's holiday to Dubai

      Kunal wanted to share with you what he most enjoyed on his recent holiday to Dubai!
      28 views
      Update on inclusive terminology for Fragile X conditions
      • May 10

      Update on inclusive terminology for Fragile X conditions

      In April 2022, the term ‘mental retardation’ was officially removed from the expanded name of FMR1, and more inclusive names adopted.
      154 views
      Getting ready for the new school year
      • May 5

      Getting ready for the new school year

      Caroline Pringle, our Families and Professionals Advisor for Child Enquiries, shares some tips for the new school year
      23 views
      New pathways of support for Fragile X Syndrome
      • Apr 19

      New pathways of support for Fragile X Syndrome

      Launch of Fragile X International (FraXI), a new organisation for families and healthcare professionals who live or work with Fragile X
      91 views
      Eradication of 'mental retardation' from language describing Fragile X Conditions
      • Apr 13

      Eradication of 'mental retardation' from language describing Fragile X Conditions

      New and inclusive terminology to be adopted in scientific and clinical literature, improving respect for neurodiversity
      142 views
      Ukraine
      • Mar 31

      Ukraine

      Our Fragile X Society here in the UK is part of a growing network of countries dedicated to supporting the Fragile X Community and I...
      44 views
      Barriers to participating in clinical trials
      • Mar 24

      Barriers to participating in clinical trials

      What are they and how can they be addressed by researchers of medication trials for Fragile X Syndrome?
      55 views
      Road to Recovery Project: overview, update and final recruitment call
      • Mar 16

      Road to Recovery Project: overview, update and final recruitment call

      Carers and their children with learning disabilities invited to share their experiences of COVID-19 pandemic using fun, inclusive activities
      35 views
      Using Visual Aids
      • Mar 2

      Using Visual Aids

      Caroline Pringle, Families and Professionals Advisor (Child Enquiries) shares top tips on using visual aids to support your child.
      249 views
      The Neuro-GD Study: with Fragile X Coach Deno
      • Feb 24

      The Neuro-GD Study: with Fragile X Coach Deno

      Jo shares her story of son Dennis' participation in the Neuro-GD Study run by Dr Andy Stanfield and colleagues at the Patrick Wild Centre
      47 views
      Whole Genome Sequencing (WGS) to detect repeat expansion disorders including Fragile X Syndrome
      • Feb 24

      Whole Genome Sequencing (WGS) to detect repeat expansion disorders including Fragile X Syndrome

      New research paper published in The Lancet which demonstrates that whole genome sequencing (WGS) can quickly detect neurological conditions
      259 views
      Measuring electrical activity in the brain may help in development of drug therapies for Fragile X
      • Feb 23

      Measuring electrical activity in the brain may help in development of drug therapies for Fragile X

      Measuring electrical activity in the brain may help in development of drug therapies for Fragile X in new study from the Patrick Wild Centre
      86 views
      The kindness of strangers
      • Feb 15

      The kindness of strangers

      One of our members shared this story about her son's employment journey
      37 views
      Boston Marathon
      • Feb 9

      Boston Marathon

      One of our Directors, John Quaye, is running the Boston Marathon on behalf of Fragile X Society on 18 April this year - his 14th marathon!
      156 views
      Managing transitions and planning for the future webinar: Thursday 17 February at 7:30pm
      • Jan 26

      Managing transitions and planning for the future webinar: Thursday 17 February at 7:30pm

      Join us on online on Thurs 17 Feb 7.30pm for ‘Managing transitions and planning for the future', with Christine Towers of Together Matters
      189 views
      Fraud
      • Jan 20

      Fraud

      One of our members highlights a problem their family has experienced, in the hope it may prevent something similar happening to yours.
      146 views
      Kunal's favourite activities
      • Jan 13

      Kunal's favourite activities

      Kunal wanted to share with you some of the things he's enjoyed doing over the last few months.
      106 views
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