We are delighted to let you know about a forthcoming International Workshop on Fragile X Syndrome on  June 20th 2025  in Padua, organised...

In March this year, Thomas, Andrews son and Catriona's nephew was diagnosed with Fragile X Syndrome. They will participate in the...

In March 2025, we hosted our Edinburgh conference for the second consecutive year. The event was highly successful. We extend our...

Thank you all for attending the conference and for playing such an important role in making it a truly meaningful and inspiring event....

Thank you to Sabrina, one of our FX members, who sent in this lovely picture of her children over the Easter Holidays having some "Easter...

Thank you to Sarah for sending in these lovely photos of her two sons, Klay and Kruz, who are both living with Fragile X syndrome. Klay,...

We extend our heartfelt thanks to Katrina, her family, and friends for their generous donation of £470 collected at Vicki's funeral. Our...

Alison Field, our Families & Professional Advisor, has authored this blog containing sensory information and references that she believes...

Increasing awareness and driving change for the 300 million individuals globally affected by a rare disease, along with their families...

Nathasha Gardi is presently working on her master's dissertation, which is a project titled "What do you think about hearing aids?"...

Sabrina is a parent of a child with Fragile X and a medical professional. She appreciates the complexities of understanding the...

Steve Harris, the FX Chair, was invited by the Deacon at the Trades House of Glasgow to receive a cheque. The Bakers organized a charity...

We are delighted to share with you the news that Olia Hercules has agreed to become an Ambassador for the Fragile X Society. Olia is a...

Flo Read, a Research Assistant at the School of Biomedical Sciences, interviews Dr. Marine Krzisch regarding Fragile X syndrome and...

Patrick Wild Centre are looking for volunteers with full mutation fragile X syndrome (aged 3-45) to join their study that aims to better...

As we start 2025 lets celebrate all of our achievements of 2024.

Eddie and Ciara successfully finished the Winter Milton Keynes half marathon. Despite the terrible weather, Eddie completed the race with...

A couple of weeks ago Pete Richardson, Managing Director, was privileged to be able to deliver a presentation on Fragile X to the Leeds...

During the Charity Stewards’ Lodge meeting at Chingford Masonic Hall on November 6th, Pete was thrilled to present on Fragile X to an...