11 hours agoLuke and Jas's marathon week for Fragile XLuke Atterbury and friend, Jas, have recently tackled not one, but two, challenges in aid of the Fragile X Society
May 19Mencap's Big Learning Disability SurveyMencap would like to invite people with a learning disability to take part in their 2022 Big Learning Disability Survey! Have your say:
May 19Jonathan and Darcy run the Oxford Town and GownFather and daughter team run 10k race in aid of Fragile X Society
May 19Kunal's holiday to DubaiKunal wanted to share with you what he most enjoyed on his recent holiday to Dubai!
May 10Update on inclusive terminology for Fragile X conditionsIn April 2022, the term ‘mental retardation’ was officially removed from the expanded name of FMR1, and more inclusive names adopted.
May 5Getting ready for the new school yearCaroline Pringle, our Families and Professionals Advisor for Child Enquiries, shares some tips for the new school year
Apr 19New pathways of support for Fragile X Syndrome Launch of Fragile X International (FraXI), a new organisation for families and healthcare professionals who live or work with Fragile X
Apr 13Eradication of 'mental retardation' from language describing Fragile X ConditionsNew and inclusive terminology to be adopted in scientific and clinical literature, improving respect for neurodiversity
Mar 31UkraineOur Fragile X Society here in the UK is part of a growing network of countries dedicated to supporting the Fragile X Community and I...
Mar 24Barriers to participating in clinical trialsWhat are they and how can they be addressed by researchers of medication trials for Fragile X Syndrome?
Mar 16Road to Recovery Project: overview, update and final recruitment callCarers and their children with learning disabilities invited to share their experiences of COVID-19 pandemic using fun, inclusive activities
Mar 2Using Visual AidsCaroline Pringle, Families and Professionals Advisor (Child Enquiries) shares top tips on using visual aids to support your child.
Feb 24The Neuro-GD Study: with Fragile X Coach DenoJo shares her story of son Dennis' participation in the Neuro-GD Study run by Dr Andy Stanfield and colleagues at the Patrick Wild Centre
Feb 24Whole Genome Sequencing (WGS) to detect repeat expansion disorders including Fragile X SyndromeNew research paper published in The Lancet which demonstrates that whole genome sequencing (WGS) can quickly detect neurological conditions
Feb 23Measuring electrical activity in the brain may help in development of drug therapies for Fragile XMeasuring electrical activity in the brain may help in development of drug therapies for Fragile X in new study from the Patrick Wild Centre
Feb 15The kindness of strangersOne of our members shared this story about her son's employment journey
Feb 9Boston MarathonOne of our Directors, John Quaye, is running the Boston Marathon on behalf of Fragile X Society on 18 April this year - his 14th marathon!
Jan 26Managing transitions and planning for the future webinar: Thursday 17 February at 7:30pmJoin us on online on Thurs 17 Feb 7.30pm for ‘Managing transitions and planning for the future', with Christine Towers of Together Matters
Jan 20FraudOne of our members highlights a problem their family has experienced, in the hope it may prevent something similar happening to yours.
Jan 13Kunal's favourite activitiesKunal wanted to share with you some of the things he's enjoyed doing over the last few months.