May 10Update on inclusive terminology for Fragile X conditionsIn April 2022, the term ‘mental retardation’ was officially removed from the expanded name of FMR1, and more inclusive names adopted.
Apr 13Eradication of 'mental retardation' from language describing Fragile X ConditionsNew and inclusive terminology to be adopted in scientific and clinical literature, improving respect for neurodiversity
Mar 24Barriers to participating in clinical trialsWhat are they and how can they be addressed by researchers of medication trials for Fragile X Syndrome?
Mar 16Road to Recovery Project: overview, update and final recruitment callCarers and their children with learning disabilities invited to share their experiences of COVID-19 pandemic using fun, inclusive activities
Feb 24Whole Genome Sequencing (WGS) to detect repeat expansion disorders including Fragile X SyndromeNew research paper published in The Lancet which demonstrates that whole genome sequencing (WGS) can quickly detect neurological conditions
Feb 23Measuring electrical activity in the brain may help in development of drug therapies for Fragile XMeasuring electrical activity in the brain may help in development of drug therapies for Fragile X in new study from the Patrick Wild Centre
Jul 14, 2020Social Interactions in Children with Fragile X Syndrome and Other Neurodevelopmental Conditions Social Interactions in Children with FXS and Other Neurodevelopmental Conditions: a research update
Jul 2, 2020Attention, Learning and Memory in young people with Fragile X syndrome: Does social context matter?Attention, Learning and Memory in young people with fragile X syndrome: Does social context matter?
Jan 30, 2020Fragile X Premutation Associated Conditions (FXPAC) StatementA European Fragile X Network meeting discussed the term FXAND and recent research on conditions affecting Fragile X premutation carriers.
Nov 28, 2019The Fragile X Community's Views on ScreeningRecently, Dr Felicity Boardman and colleagues from Warwick Medical School conducted a study to investigate the implications of genetic...