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    • Home

    • About Fragile X

      • Fragile X and Autism
      • Diagnosis
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      Update on inclusive terminology for Fragile X conditions
      • May 10

      Update on inclusive terminology for Fragile X conditions

      In April 2022, the term ‘mental retardation’ was officially removed from the expanded name of FMR1, and more inclusive names adopted.
      199 views
      Eradication of 'mental retardation' from language describing Fragile X Conditions
      • Apr 13

      Eradication of 'mental retardation' from language describing Fragile X Conditions

      New and inclusive terminology to be adopted in scientific and clinical literature, improving respect for neurodiversity
      157 views
      Barriers to participating in clinical trials
      • Mar 24

      Barriers to participating in clinical trials

      What are they and how can they be addressed by researchers of medication trials for Fragile X Syndrome?
      57 views
      Road to Recovery Project: overview, update and final recruitment call
      • Mar 16

      Road to Recovery Project: overview, update and final recruitment call

      Carers and their children with learning disabilities invited to share their experiences of COVID-19 pandemic using fun, inclusive activities
      36 views
      Whole Genome Sequencing (WGS) to detect repeat expansion disorders including Fragile X Syndrome
      • Feb 24

      Whole Genome Sequencing (WGS) to detect repeat expansion disorders including Fragile X Syndrome

      New research paper published in The Lancet which demonstrates that whole genome sequencing (WGS) can quickly detect neurological conditions
      286 views
      Measuring electrical activity in the brain may help in development of drug therapies for Fragile X
      • Feb 23

      Measuring electrical activity in the brain may help in development of drug therapies for Fragile X

      Measuring electrical activity in the brain may help in development of drug therapies for Fragile X in new study from the Patrick Wild Centre
      89 views
      Social Interactions in Children with Fragile X Syndrome and Other Neurodevelopmental Conditions
      • Jul 14, 2020

      Social Interactions in Children with Fragile X Syndrome and Other Neurodevelopmental Conditions

      Social Interactions in Children with FXS and Other Neurodevelopmental Conditions: a research update
      372 views
      Attention, Learning and Memory in young people with Fragile X syndrome: Does social context matter?
      • Jul 2, 2020

      Attention, Learning and Memory in young people with Fragile X syndrome: Does social context matter?

      Attention, Learning and Memory in young people with fragile X syndrome: Does social context matter?
      285 views
      Fragile X Premutation Associated Conditions (FXPAC) Statement
      • Jan 30, 2020

      Fragile X Premutation Associated Conditions (FXPAC) Statement

      A European Fragile X Network meeting discussed the term FXAND and recent research on conditions affecting Fragile X premutation carriers.
      1,010 views
      The Fragile X Community's Views on Screening
      • Nov 28, 2019

      The Fragile X Community's Views on Screening

      Recently, Dr Felicity Boardman and colleagues from Warwick Medical School conducted a study to investigate the implications of genetic...
      842 views
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