We want to share an important update from Harmony Biosciences about the RECONNECT clinical trial. Harmony have released the following news, following their review of the trial data. We know how much hope and commitment families have invested in this study, so we are sharing the update here to keep everyone informed and supported. Participants involved in the trial will also be contacted directly by their clinical sites. Thank you to everyone in the Fragile X community who con

Elisa Castaldi PhD is a researcher at the University of Florence and is carrying out a fully remote study exploring the relationship between numerical and visuo spatial abilities. We are delighted to share a short video by Elisa, who is investigating the relationship between numerical and visuo spatial abilities, as well as the influence of genetic factors, specifically the Fragile X gene in its premutation range, alongside experiential and emotional factors. In the video, El

Harmony Biosciences has shared the results of their Phase 3 trial RECONNECT Study. Unfortunately, the study did not meet its primary...

Supporting Learning with Numbers: Highlights from Our Recent MathMIND Webinar We were delighted to welcome families and professionals to...

My name is Katie Quinn, and I have just started a PhD looking into Fragile X and the impact of being a caregiver for this condition....

A health research company, Global Market Access Solutions, is conducting parent interviews to learn more about the experience of...

Flo Read, a Research Assistant at the School of Biomedical Sciences, interviews Dr. Marine Krzisch regarding Fragile X syndrome and...

Patrick Wild Centre are looking for volunteers with full mutation fragile X syndrome (aged 3-45) to join their study that aims to better...

What are the challenges of developing independence and supporting the quality of life of adult males affected by Fragile X Syndrome?   I...

The University of Surrey is currently conducting a research study that aims to explore the experiences of parents and carers who have...