Harmony Biosciences has shared the results of their Phase 3 trial RECONNECT Study. Unfortunately, the study did not meet its primary...

Supporting Learning with Numbers: Highlights from Our Recent MathMIND Webinar We were delighted to welcome families and professionals to...

My name is Katie Quinn, and I have just started a PhD looking into Fragile X and the impact of being a caregiver for this condition....

A health research company, Global Market Access Solutions, is conducting parent interviews to learn more about the experience of...

Flo Read, a Research Assistant at the School of Biomedical Sciences, interviews Dr. Marine Krzisch regarding Fragile X syndrome and...

Patrick Wild Centre are looking for volunteers with full mutation fragile X syndrome (aged 3-45) to join their study that aims to better...

What are the challenges of developing independence and supporting the quality of life of adult males affected by Fragile X Syndrome?   I...

The University of Surrey is currently conducting a research study that aims to explore the experiences of parents and carers who have...

TouchFX study  - Touch sensitivity in fragile X syndrome Researchers from the Patrick Wild Centre are currently looking for volunteers to...

Dr Gaia Scerif (Uni of Oxford), Dr Emily Farran (Uni of Surrey), and Dr Jo Van Herwegen (UCL) are currently looking for volunteers (4-9...