International Survey on Pain Experience
An update from Dr Natali Bozhilova on international survey on pain experience in people with Prader-Willi, Williams and Fragile X syndromes
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Research
We are proud to support ongoing research projects that contribute to improving the lives of those with Fragile X Syndrome, and have helped many of our members to get involved. Below you can read about the latest findings from research projects we have supported, as well as other research projects from around the world.
We encourage our community to get touch and share any ideas and types of research that may prove useful for the charity to explore. You can contact us directly and join our Facebook group below to discuss your research ideas with other members.
Research Facebook Group
You can join our Facebook group to share information about research into Fragile X, including Fragile X Syndrome, FXTAS, FXPOI and the Fragile X premutation more broadly. Our hope is that this group will facilitate dialogue about research and promote awareness of opportunities to take part.
The group is for researchers, families and anyone interested in research into Fragile X Syndrome and the Fragile X premutation. The group provides a forum for discussion about the latest research and a space for conversations about the types of research people would like to see.
We regularly post information about all research projects that have been approved by the Fragile X Society Research Committee, enabling group members to interact directly and ask any questions about participation.
Research Policy
The Fragile X Society welcomes research into all aspects of Fragile X Syndrome (FXS) and Fragile X Premutation-Associated Conditions. In order to safeguard our families and members we have instituted the following research policy governing which research projects we can disseminate to our members.
Take Part in Research
The Fragile X Society aims to support research and has so far been involved with over 60 projects and counting! By finding out more about Fragile X Syndrome, we hope that support for people with Fragile X and their families can be improved. Find out more about opportunities to take part in current research projects.
Research News
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