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Become a Member


As a charity, we are proud to provide free information and support to individuals, families, carers, professionals, schools, and others, about Fragile X Syndrome and its associated conditions (FXTAS and FXPOI). Full membership is offered free to those affected by Fragile X and allows us to keep you up-to-date with all the latest Fragile X news and information via our regular updates, including our email newsletters

Importantly, becoming a member demonstrates that you are part of our community and therefore helping us to highlight the need for our services and the greater awareness and support for Fragile X Syndrome required. 


If you suspect that you, or someone you know may have Fragile X, then please explore the information throughout our website, or contact our Families and Professionals Advisors.


Membership Types


Full Membership

If a diagnosis of Fragile X for yourself or a family member has been confirmed with a genetic test, then you are eligible to become a full member.


Full membership entitles you to receive our email newsletters and have your say in the running of the Fragile X Society via our Annual General Meeting.


You can also choose to be contacted about new research and contribute to discovering more about Fragile X. If you would like to be involved in research projects, we will ask for some basic information about your family so that we can inform you about research that is relevant to you.


Full membership is available to:

  • People living in the UK who have Fragile X Syndrome

  • Families affected by Fragile X living in the UK

  • Carriers of Fragile X living in the UK


Associate Membership

Anyone in the UK who is interested in Fragile X (for instance, professionals) is eligible to join as an associate member for free.


Associate membership entitles you to updates from the Fragile X Society through our email newsletters and you will also be able to attend our conferences. 

Friends of The Fragile X Society

Membership of the Fragile X Society is free as we want to ensure that it is accessible to all the Fragile X community. However, we receive no government funding. As a small, national charity we rely on the kind support of individuals to run our vital services. Therefore, if you are in a position to do so, please consider becoming a Friend of Fragile X and providing a regular donation to support our work.

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