Become a Member to Get the Most from the Fragile X Society


As a charity we are proud to provide free information and support to individuals, families, carers, professionals, schools, and others, about Fragile X Syndrome and its associated conditions (FXTAS and FXPOI). 


If you suspect that you, or someone you know may have Fragile X, then please feel free to use the information from our website, or call our Families and Professionals Advisors.


Becoming a member means we can more easily keep you up to date with all the latest Fragile X news and information, and send you our newsletters

Importantly, by becoming a member of the charity you are showing that you are part of our community and therefore you are helping us to better demonstrate the need for our services and the need for greater awareness and support for Fragile X. 

Membership Types


Full Membership


If the diagnosis of Fragile X for yourself or the person you support has been confirmed with a genetic test, then you are eligible to become a full member.


Full members will be sent our email newsletters and will be able to have a say in the running of the Society through the Annual General Meeting.


You can also choose to be contacted about new research, so that you can help to discover more about Fragile X. If you want to be involved in research we will ask for some basic information about your family so that we can make sure we let you know about research that is relevant to you. Full membership is available to:

  • Families affected by Fragile X living in the UK

  • Carriers of Fragile X living in the UK

  • People who are affected by Fragile X living in the UK

  • Full time carers (paid or unpaid) of children or adults with Fragile X living in the UK.


Associate Membership


Anyone in the UK who is interested in Fragile X (for instance, professionals) is eligible to join as an associate member for free.


We will keep associate members up-to-date with news from the Society through our email newsletters and you will be able to attend our conferences. 

Friends of The Fragile X Society


Membership of The Fragile X Society is free as we want to ensure that it is accessible to all the Fragile X Community.  However, as a small, national charity we receive no government funding and rely on the kind support of individuals to run our services. Therefore, if you are in a position to do so, please consider becoming a Friend of Fragile X and providing a regular donation to support our work.