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Meet Our Families and Professionals Advisors

Whether you are a person living with Fragile X Syndrome, a family member, carer or professional, our Families and Professionals Advisors can offer lots of information on a range of issues relating to Fragile X Syndrome, such as education, speech, language and communication, behaviour, and sensory issues. We can also offer support in other areas such as, filling in claims for Disability Living Allowance (DLA), Personal Independence Payment (PIP) and Employment and Support Allowance (ESA).


We would like to stress that all requests for support and information are treated with strict confidentiality.


Jane - Adult Enquiries

Jane is the Society's Families and Professionals Advisor dealing with adult enquiries for individuals and families. 


Jane was previously a carer support worker for a county wide carer organisation offering support and information to unpaid family carers. She worked for over 12 years as a day service worker in a community-based day service for adults with learning disabilities. In this role, Jane worked on a 1:1 basis supporting adults with mild to profound learning disabilities to access their local community and, through Person Centered Planning, have their say in how they would like to live their lives with the right support and service provision. Both roles have given her experience in liaising with statutory agencies such as Adult Care Services, Health and other organisations from the voluntary sector.


You can contact Jane on 01371 875100 or by email at Alternatively, you can reach out for Jane’s support by filling out the website contact form.


Alison - Child Enquiries

"Having been a teacher for the past 10 years and prior to that, working as a nursery practitioner, I have been part of SEND reviews, EHCP applications as well as meetings with educational psychologists, specialist teachers, speech and language therapists and physiotherapists. I have worked with SEND coordinators to write letters to paediatricians detailing children’s support, strengths and difficulties. I really look forward to growing and developing my knowledge base and supporting Fragile X Society families within this role.”

You can contact Alison on 01371 875100 or by email at Alternatively, you can reach out for Alison's support by filling out the website contact form.

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