Meet Our Families and Professionals Advisors

Caroline - Child Enquiries

Caroline is the Society's Families and Professionals Advisor managing enquiries relating to children with Fragile X. 

Caroline joined the society in 2018 having worked in the voluntary sector for over 25 years supporting families. During this time, she gained a BA Hons open degree with the Open University studying modules including cognitive development, language and linguistics and special needs education and furthered her studies in autism.

In her spare time, she likes travelling,  and spending time with her family especially her three grandchildren.

Caroline looks forward to hearing from you, either via the telephone on 01371 875100, the website contact form or via email at

Jane - Adult Enquiries


Jane  is the Society's Families and Professionals Advisor dealing with adult enquiries for individuals and families. 


Jane has been a carer support worker for a county wide carer organization offering support and information to unpaid family carers. She worked for over 12 years as a day service worker in a community based day service for adults with learning disabilities. She worked as a 1:1 worker supporting adults with mild to profound learning disabilities to access their local community and through Person Centered Planning have their say in how they would like to live their lives with the right support and service provision. Both roles have given her experience in liasing with statutory agencies such as Adult Care Services, Health and other organisations from the voluntary sector.


Jane looks forward to hearing from you, either via the telephone on 01371 875100, the website contact form or via email at

Please contact them by phone or email

Whether you are a family member, carer or professional we have lots of information on a range of issues including education; speech, language and communication; behaviour; and sensory issues.  We can also offer support in other areas e.g. filling in claims for the Disability Living Allowance (DLA), Personal Independence Payment  (PIP) and Employment and Support Allowance (ESA).


Finally, we would like to stress that all requests for support and information are treated with strict confidentiality.