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Get Involved 


We are grateful for the kindness of local community groups and organisations, companies and individuals who all choose to get involved and recognise that our cause is both essential and unique. We receive no government funding and rely entirely on voluntary contributions. This is where you, or perhaps someone you know, might be able to help us. 


Explore the information below to find out more about the ways you can get involved to help us raise vital funds.


Become a Volunteer 


Our work wouldn’t be possible without the generous volunteer support we receive from our community. Giving your time will help us achieve our aims and continue to provide vital support to those that need it.


If you are interested in becoming a volunteer and would like more information, please get in touch with Pete:

07400 611064

Petes photo for website.jpg

Where Your Money Goes


We're so grateful for every penny our fundraising heroes raise for us! Here is a breakdown of where your money goes and how this helps us to continue providing free support and information to individuals, families, and professionals impacted by Fragile X Syndrome.


Could pay for us to send our vital information to a newly diagnosed family.


Could allow us to run our helpline service for an hour, through which we have thousands of contacts every year.


Could provide support to a family for a whole year, including use of our helpline and support, conferences and free resources.


Could pay for Families and Professionals Advisors for one month to provide evidence-based specialist support and guidance to people living with Fragile X across the UK. 


Support Us While You Shop 


Whenever you buy anything online, you could be raising a free donation for the Fragile X Society. Simply sign up for free, receive donation reminders on your device and raise funds at no extra cost while you shop using your favourite retailers. Guilt-free internet shopping!


Grant Making Trusts and Foundations 


Grant Making Trusts and Foundations play a big part in our future hopes and aspirations as a charity, providing information and guidance to support and empower individuals and families living with Fragile X Syndrome, and the professionals who support them.


Our work is both vital and unique and we know the deep value our families have put on our support. Demand for our service is growing and through our experience and expertise, we are able to recognise which key areas we need to develop in order to widen our specialist support.


For information on our current needs, appeals and interests, please contact us direct at or call 01371 875100. We appreciate your interest and support.

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