Fragile X International

We are a proud member of the International Fragile X Alliance (IFXA), a network of organisations dedicated to: 

  • Information exchange for existing national family associations/groups.

  • Guidance in the formation of new national associations/groups.

  • Better help for families already diagnosed with Fragile X through new and more effective organisations.

  • Sharing experiences to improve the ability of clinicians to make the proper diagnosis and treatment of Fragile X.

  • Helping to establish comprehensive and consistent standards for clinical care, therapies and treatment.

  • Enhancing education and training for families and professionals who are affected by and/or interested in Fragile X.

The IFXA website has a list of organisations around the world. If you would like to find out more about Fragile X support in a particular country, please contact us and we will reach out through our networks to help you.


European Fragile X Network

We are also the proud, founding members of the European Fragile X Network (EFXN). To find out more, visit the EFXN website