Meet the Team
Meet the team of dedicated employees working away behind the scenes to run the Fragile X Society. If you would like to offer your time to support the charity in any way, please do get in touch!
Pete is totally committed to supporting the Fragile X Community. Having a daughter with a complex and profound learning disability (caused by a very rare gene mutation) he has experienced first-hand the myriad of challenges that individuals and families of those with learning disabilities face.
Pete is an experienced Chief Executive/Company Secretary with over thirty years of leadership roles within the charity sector, private sector, and NHS. He has an MBA from Leeds University Business School and a degree in Psychology from Keele University.
He holds responsibility for delivering the Fragile X Society’s Charitable Objectives in accordance with best practice and charity law, ensuring that the organisation operates effectively raising funds and meeting the needs of its members.
Administrative and Communications Coordinator
Kate is responsible for general office duties and maintaining our website, email newsletters, and our database.
Kate has nearly 20 years of experience in university administration and previously worked in the charity sector for several years before joining the Fragile X Society. She has a degree in modern languages from the University of Newcastle upon Tyne. In her spare time, she enjoys exploring the British countryside in her caravan, and cooking for friends and family.
Families and Professionals Advisor (Child Enquiries)
Caroline is the Society's Families and Professionals Advisor managing enquiries relating to children with Fragile X.
Caroline joined the Fragile X Society in 2018 having worked in the voluntary sector for over 25 years supporting families. During this time, she gained a BA Hons degree with the Open University studying modules including cognitive development, language and linguistics and special needs education during which she furthered her studies in autism. In her spare time, Caroline likes travelling and spending time with her family, especially her three grandchildren.
Senior Families and Professionals Advisor (Adult Enquiries)
Jane is the Society's Families and Professionals Advisor dealing with adult enquiries for individuals and families.
Prior to joining the Fragile X Society, Jane worked as a special needs tutor in a FE college before spending over 12 years as a day service worker for an innovative community-based day service where she studied for a post graduate diploma in severe learning disability. She also previously worked as a family carer support worker for a carers organisation linking with services and statutory organisations. In her spare time, Jane enjoys gardening, reading and walking a very lively Labrador.