Meet the Team

Pete is totally committed to supporting the Fragile X Community. Having a daughter with a complex and profound learning disability (caused by a very rare gene mutation) he has experienced first-hand the myriad of challenges that individuals and families of those with learning disabilities face.

Pete is an experienced Chief Executive/Company Secretary with over thirty years of leadership roles within the charity sector, private sector, and NHS. He has an MBA from Leeds University Business School and a degree in Psychology from Keele University.

He holds responsibility for delivering the Fragile X Society’s Charitable Objectives in accordance with best practice and charity law, ensuring that the organisation operates effectively raising funds and meeting the needs of its members.

I have spent the past 10 years as a primary teacher, and before that worked as a nursery practitioner. During this time, I have taken part in SEND reviews, worked with EHCPs, and along the way met with educational psychologists, specialist teachers, and speech and language therapists. I have also worked with SEND coordinators on developing and reviewing one-page profiles and support plans. I’m really looking forward to building on this experience and supporting Fragile X Society families in this role.

I have a degree in Psychosocial Sciences which I studied at the University of East Anglia. I have 2 children and previously enjoyed travelling through India, Thailand, Australia and New Zealand. I enjoy reading and running in my spare time.

Jane is the Society's Families and Professionals Advisor dealing with adult enquiries for individuals and families.

Prior to joining the Fragile X Society, Jane worked as a special needs tutor in a FE college before spending over 12 years as a day service worker for an innovative community-based day service where she studied for a post graduate diploma in severe learning disability. She also previously worked as a family carer support worker for a carers organisation linking with services and statutory organisations. In her spare time, Jane enjoys gardening, reading and walking a very lively Labrador.

Claire joined the Fragile X Society as Office Manager and is based at our Great Dunmow office. She brings extensive experience in administrative and office-based roles, and plays a key part in ensuring the smooth and professional running of our operations.

Outside of work, Claire enjoys spending time with her family, going for walks, playing squash, and relaxing with her favourite craft hobbies.

Jan recently rejoined the Fragile X Society in a part-time freelance role, focusing on reconnecting with families and strengthening partnerships across Northern Ireland.

With over 35 years’ experience in the voluntary and community sector, Jan brings a wealth of knowledge and has previously worked with organisations like NIACRO, Family Fund, and The National Lottery Community Fund. She’s also been actively involved in rare disease advocacy, collaborating with Queen’s University Belfast, the Northern Ireland Rare Disease Partnership, and the All-Party Group on Rare Disease at Stormont.

On a personal note, Jan is a devoted dog mum to Sally, a rescue collie cross who proudly wears her Fragile X bandana.

I felt completely out of my depth when I found out my son had been diagnosed with full mutation Fragile X syndrome. A condition I had never came across left me feeling like I was completely alone. That was up until I reached out to the Fragile X Society who were able to provide me with lots of information and support. Since then, I have worked endlessly voluntarily to raise as much awareness of Fragile X as possible as well as be a comfort and relatable support to others who find themselves in the same position. With my medical background of nursing I've always felt giving the opportunity and resources there is so much more I could achieve on behalf of the society and most importantly, my fellow family members. Needless to say I felt truly honoured to have been given the opportunity of becoming the Societies Scotland Contract Manager role and will work hardest off to try and better the future for all.