Our News

We regularly post on our news page to keep you updated with the latest developments at the Fragile X Society. Find out about new fundraisers and team updates, as well as details on extra ways to support us by getting involved in awareness days and competitions.

A Rare Find is released this Sunday, 5th November 2023

The UK currently screens newborns for just 9 rare but serious conditions whereas the USA tests for up to 59. Local filmmaker John Lee...

Leicester Fragile X Hub

Today I’d like to share some really exciting news about plans to develop a Specialist Fragile X Hub in Leicester and how you can be...

Helpline

Rare Disease Day: 28 February 2023

NEW: watch our animated video raising awareness of Fragile X and associated conditions, to mark Rare Disease Day 2023.

We are hiring!

We are seeking to recruit a part-time Office Administrator to work at our office in Great Dunmow Essex. Find out more including how to apply

Farewell from Mark Smith

Director, Mark Smith, says goodbye to the Fragile X Society Board, and shares what inspired him to get involved.

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01371 875100

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