Working Together to Raise Awareness of Fragile X
- 2 days ago
- 1 min read
We are delighted to share that Sabrina has recently partnered with the Fragile X Society to help raise awareness of Fragile X syndrome and to champion the voices of families at the heart of our community.
Following her son’s diagnosis, Sabrina became determined to make a difference. Like many parents, she experienced first hand how limited awareness and understanding can be at the point of diagnosis. Rather than stepping back, she chose to step forward. What began as a personal commitment to create change has grown into a powerful platform for awareness, honesty and advocacy.
Sabrina brings authenticity, warmth and reach to this partnership. Through her social media channels, she speaks openly about family life, diagnosis, challenges and strengths. That openness helps other families feel less alone and encourages wider understanding within the community.
At the Fragile X Society, we believe lived experience is one of the most powerful tools we have. When families share their stories, it drives change in services, strengthens professional awareness and builds connection between those walking a similar path.
We are excited about what lies ahead. Together, we will continue working to increase awareness of Fragile X, amplify family voices and ensure that no one feels they have to navigate this journey on their own.
This partnership is about more than visibility. It is about building understanding, strengthening support and creating a future where families affected by Fragile X are recognised, informed and empowered.