Mum, Rachael Woods was setting out on a practice run from the doorstep of her home, with twins Zoe and Freya, 27, in preparation to do a 5K event for the Fragile X Society. The girls were sporting their Fragile X T-shirts, when mum Sarah Ker-Lindsay drove past Rachael’s house. “I instantly recognised the blue T-shirt as belonging to the Fragile X Society,” said Sarah, who was on a family trip to the garden centre. “We drove past again to double check, and when I spotted the F

Over the summer, we invited families to share some of their favourite photos and memories with us. We had a lovely response, and Sabrina has brought them together into this special video celebrating our Fragile X community and the moments that made the summer memorable. A big thank you to everyone who sent in photos and helped make this video possible. We hope you enjoy watching it as much we did.

We were absolutely delighted to hear this wonderful news from one of our families and are so pleased to be able to share it with our community. Rhys, alongside Owen, trains twice a week with the Manchester United Foundation, showing real commitment and enthusiasm for football. Last year, Rhys was selected to represent the Foundation at the Genuine Cup in Houston, Texas an incredible and truly once in a lifetime opportunity. The Genuine Cup brings together teams from across t

In the lead up to our recent conference, centred around living with Fragile X, Sabrina Kinsella reached out to families across our community with a simple but powerful idea, to capture meaningful, everyday moments with their loved ones with Fragile X. The response was truly heart warming, with families generously sharing clips that reflected joy, connection and the unique personalities of their children and family members. Sabrina brought these together into a beautiful video

James and Corina from North Lanarkshire have kindly shared the wonderful achievements of their son Fraser, aged 31, whose love of music continues to grow and inspire those around him. Over the festive period, Fraser successfully organised and performed a Christmas concert for friends and family. Playing the guitar, he entertained his audience with confidence and enthusiasm, creating a memorable and joyful occasion that everyone involved will treasure. Fraser has Fragile X Syn

Thank you to Sabrina, one of our FX members, who sent in this lovely picture of her children over the Easter Holidays having some "Easter...

Thank you to Sarah for sending in these lovely photos of her two sons, Klay and Kruz, who are both living with Fragile X syndrome. Klay,...

We extend our heartfelt thanks to Katrina, her family, and friends for their generous donation of £470 collected at Vicki's funeral. Our...

Sabrina is a parent of a child with Fragile X and a medical professional. She appreciates the complexities of understanding the...

Michael kindly shared his story of why he chose to support the Fragile X Society.