Freya's Story
Freya has written a lovely story in her own words to help raise awareness about people with learning disabilities. I’m not less than you....
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- Jul 27
Kunal's Days Out
Kunal has kindly shared some of the days out he has been on recently and we have enjoyed reading and seeing what a great time he had. My...
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- Feb 15
Kunal's Activities
Kunal wanted to share with you all some of the fun activities he enjoys with his friends at Pholk Care My name is Kunal Panchal and I...
136 views
- Jan 6
Emily to represent Great Britain in Special Olympics 2023
Louise Clarke shares the exciting news that daughter Emily has been selected to represent Great Britain in tennis at the Special Olympics
281 views
- Nov 29, 2022
Where are they now? with the Irvines
In this first instalment of our new series, Sally and Jim Irvine share this family update about sons Jamie (40) and Stephen (35)
191 views
- Nov 3, 2022
Coping with the death of HM Queen Elizabeth II
Jo has shared this story of how her son, Dennis (known as Coach Deno) has coped with the death of Her Late Majesty Queen Elizabeth II
246 views
- Oct 10, 2022
International Fragile X Awareness Day 2022: 10 October
Today is International Fragile X Awareness Day. But what is life really like with Fragile X? Watch our special family stories to find out.
190 views
- Aug 17, 2022
Our family trip to the NFXF Conference, San Diego
Katrina sent us this update and pictures from her family's summer trip to the National Fragile X Foundation (NFXF) conference in San Diego.
88 views
- Aug 17, 2022
Five simple tips for hot weather
Laura has shared these great tips which helped her child cope with the recent hot weather.
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- Aug 4, 2022
Fragile X and FXTAS: my family's story
Emma has shared with us her family's story of Fragile X and FXTAS (Fragile X-Associated Tremor/Ataxia Syndrome) Emma tells us, "I had...
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