The Milne's Story
Paula Milne Let’s go right back to the beginning for my little family. I shall start off by introducing ourselves. I am Paula (hurtling...
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- Oct 17, 2021
Lucie and Sarah
Sarah & Lucie Wakeford 25 Years Ago Twenty five years ago Fragile X was not in our orbit but it entered our world in the summer of 1994....
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- Oct 17, 2021
The Page's Story
Kerry page When I first got my eldest boy George, then 2, diagnosed with Fragile X Syndrome, I had no clue what it was, whether he would...
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- Oct 16, 2021
25 Years On: Janine's Family Story
Janine Peat 1990 Geoffrey had been just diagnosed. In the days before the internet, let alone Facebook, I knew no one who had a child...
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- Oct 15, 2021
25 Years On: Martin's First Flat
Jim Paterson Martin, our youngest child, was diagnosed in Edinburgh with Fragile X Syndrome when he was nine years old, but it was...
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- Oct 15, 2021
25 Years On: I Love My Job!
Hannah Bayly & Jo Barr There’s something very humbling about setting about writing a story that comes from deep within the heart; and...
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- Oct 14, 2021
25 Years On: Supporting Siblings
Kathryn Silk 1990 Katherine and Susan in 1990 Ian and Howard in 1990 Our father was seventy-four at the time and looking after two sons,...
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- Oct 14, 2021
Chloe's Story
Pippa Wyndham-Pearce shares daughter Chloe's story, and reflects on her growing confidence as she moves from her teens into young...
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- Oct 13, 2021
The Leath Family
“My name is Elizabeth Leath. I am a pre-mutation carrier of Fragile X Syndrome, and I have 2 little girls with the full mutation. Fragile...
285 views
- Oct 12, 2021
A Serious Case of Empty Nest Syndrome!
Edel Harris shares the story, of son Ross gaining independence, and moving in to his own flat. "My son Ross is 23 and was diagnosed with...
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