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    • Home

    • About Fragile X

      • Fragile X and Autism
      • Diagnosis
      • Genetic Testing
      • Carriers
      • Personal Stories
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    • Help & Support

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      • Snippets of Advice Blog
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      The Milne's Story
      • Oct 18, 2021

      The Milne's Story

      Paula Milne Let’s go right back to the beginning for my little family. I shall start off by introducing ourselves. I am Paula (hurtling...
      29 views
      Lucie and Sarah
      • Oct 17, 2021

      Lucie and Sarah

      Sarah & Lucie Wakeford 25 Years Ago Twenty five years ago Fragile X was not in our orbit but it entered our world in the summer of 1994....
      38 views
      The Page's Story
      • Oct 17, 2021

      The Page's Story

      Kerry page When I first got my eldest boy George, then 2, diagnosed with Fragile X Syndrome, I had no clue what it was, whether he would...
      30 views
      25 Years On: Janine's Family Story
      • Oct 16, 2021

      25 Years On: Janine's Family Story

      Janine Peat 1990 Geoffrey had been just diagnosed. In the days before the internet, let alone Facebook, I knew no one who had a child...
      17 views
      25 Years On: Martin's First Flat
      • Oct 15, 2021

      25 Years On: Martin's First Flat

      Jim Paterson Martin, our youngest child, was diagnosed in Edinburgh with Fragile X Syndrome when he was nine years old, but it was...
      8 views
      25 Years On: I Love My Job!
      • Oct 15, 2021

      25 Years On: I Love My Job!

      Hannah Bayly & Jo Barr There’s something very humbling about setting about writing a story that comes from deep within the heart; and...
      16 views
      25 Years On: Supporting Siblings
      • Oct 14, 2021

      25 Years On: Supporting Siblings

      Kathryn Silk 1990 Katherine and Susan in 1990 Ian and Howard in 1990 Our father was seventy-four at the time and looking after two sons,...
      11 views
      Chloe's Story
      • Oct 14, 2021

      Chloe's Story

      Pippa Wyndham-Pearce shares daughter Chloe's story, and reflects on her growing confidence as she moves from her teens into young...
      9 views
      The Leath Family
      • Oct 13, 2021

      The Leath Family

      “My name is Elizabeth Leath. I am a pre-mutation carrier of Fragile X Syndrome, and I have 2 little girls with the full mutation. Fragile...
      64 views
      A Serious Case of Empty Nest Syndrome!
      • Oct 12, 2021

      A Serious Case of Empty Nest Syndrome!

      Edel Harris shares the story, of son Ross gaining independence, and moving in to his own flat. "My son Ross is 23 and was diagnosed with...
      16 views
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