Oct 18, 2021The Milne's StoryPaula Milne Let’s go right back to the beginning for my little family. I shall start off by introducing ourselves. I am Paula (hurtling...
Oct 17, 2021Lucie and SarahSarah & Lucie Wakeford 25 Years Ago Twenty five years ago Fragile X was not in our orbit but it entered our world in the summer of 1994....
Oct 17, 2021The Page's StoryKerry page When I first got my eldest boy George, then 2, diagnosed with Fragile X Syndrome, I had no clue what it was, whether he would...
Oct 16, 202125 Years On: Janine's Family StoryJanine Peat 1990 Geoffrey had been just diagnosed. In the days before the internet, let alone Facebook, I knew no one who had a child...
Oct 15, 202125 Years On: Martin's First FlatJim Paterson Martin, our youngest child, was diagnosed in Edinburgh with Fragile X Syndrome when he was nine years old, but it was...
Oct 15, 202125 Years On: I Love My Job!Hannah Bayly & Jo Barr There’s something very humbling about setting about writing a story that comes from deep within the heart; and...
Oct 14, 202125 Years On: Supporting SiblingsKathryn Silk 1990 Katherine and Susan in 1990 Ian and Howard in 1990 Our father was seventy-four at the time and looking after two sons,...
Oct 14, 2021Chloe's StoryPippa Wyndham-Pearce shares daughter Chloe's story, and reflects on her growing confidence as she moves from her teens into young...
Oct 13, 2021The Leath Family“My name is Elizabeth Leath. I am a pre-mutation carrier of Fragile X Syndrome, and I have 2 little girls with the full mutation. Fragile...
Oct 12, 2021A Serious Case of Empty Nest Syndrome!Edel Harris shares the story, of son Ross gaining independence, and moving in to his own flat. "My son Ross is 23 and was diagnosed with...