We are pleased to announce that Thetford Golf Club has selected the Fragile X Society UK as their chosen charity. This is wonderful news for our community and we are incredibly grateful to the club members for selecting us. Over the coming year, Thetford Golf Club will be organising fundraising activities and events to help raise both awareness and vital funds to support families affected by Fragile X syndrome across the UK. We would also like to say a special thank you to Ma

We are so proud of Mariana as she gets ready to run the Stockholm Marathon 2026  in support of The Fragile X Society. Taking on 26.2 miles is no small thing, and the fact that she is doing it to raise funds and awareness for families affected by Fragile X makes it even more inspiring. Every step she takes will help us continue providing trusted information, support and connection for families across the UK. Fundraisers like Mariana truly make a difference. The money she raise

In April, Phil will be taking on the London Marathon in memory of his wonderful father, who sadly passed away just under three years ago. Many of you may remember that Phil ran the marathon two years ago in his dad’s memory. This year, he is once again lacing up his running shoes to honour him, reflect on the love they shared, and turn that loss into something positive for others. Running 26.2 miles is never easy, but doing it in memory of someone so special carries an even d

We’re incredibly proud of identical twins Freya and Zoe Woods, who recently took part in The One in the Park  5K event in Greenwich on Sunday 26 October 2025, all to raise funds and awareness for the Fragile X Society. Both Freya and Zoe have Fragile X Syndrome, and were keen to give something back to the charity that supports families like theirs. Dressed in our official Fragile X Society clothing, the twins were cheered on by members of the public as they tackled the scenic

We are delighted to share that James and Chris will be taking on the Yorkshire Marathon  this October in support of the Fragile X...

Throughout September 2025, Lewis is taking on an incredible personal challenge to raise awareness and funds for the Fragile X Society UK....

As a small charity making a big impact, the Fragile X Society relies on the generosity and creativity of our community to keep vital...

We sincerely thank Lorraine for her remarkable efforts in raising awareness and funds for the Fragile X Society by taking part in the...

Thank you for sharing this wonderful picture of Amelia, who participated in an Easter Egg competition themed 'fun run for Fragile...

In March this year, Thomas, Andrews son and Catriona's nephew was diagnosed with Fragile X Syndrome. They will participate in the...