We’re sharing this webinar from the National Fragile X Foundation and the LivJoy Foundation, exploring how anxiety presents in females with Fragile X Syndrome, how to recognise it, and practical approaches to support across the lifespan.

A guide for families of children with Fragile X syndrome The Government is asking for feedback on proposed changes to the education system in England, including support for children and young people with Special Educational Needs and Disabilities. This is your opportunity to share what life is really like for your child and help shape future support. You do not need to be an expert to take part. Your experience matters. If you would like to learn more about the proposals, you

Being online is now part of everyday life. Many children, young people, and adults with Fragile X enjoy using tablets, phones, and computers to watch videos, play games, learn new things, and keep in touch with others. For families, this can bring a mix of positives and some understandable questions about how best to offer support. People with Fragile X often bring real strengths to the online world. The internet can be a place where people feel confident exploring what they

As Christmas draws near, it can be a wonderful time for family connection, celebration, and fun—but it can also bring big changes in routines, new sensory experiences, and social demands that can feel overwhelming for many people with Fragile X syndrome. Whether you’re caring for a child, teenager or adult, a bit of preparation and planning can help make the festive period calmer and more enjoyable for everyone. ________________________________________ Keeping routines steady

As autumn has settled in and the new school year is firmly in progress, it’s a good time to reflect on how young people connect with one another, both in person and online. For many, friendships and peer connections bring joy and belonging. But for others, especially children and young people with additional needs, social interactions can sometimes be complicated and even stressful. That’s why Anti-Bullying Week , coordinated each November across the UK, is such an important

by Jane Oliver - Senior Families & Professional Advisor Do you have a diagnosis of FXTAS and are struggling to find an appropriate exercise routine? There’s growing evidence showing just how important safe, regular exercise is if you have Fragile X-associated Tremor/Ataxia Syndrome (FXTAS). FXTAS is sometimes described as a “use it or lose it” condition, which can sound harsh, but it simply highlights how vital movement is in maintaining strength and function. Exercising regu

Autumn brings so many seasonal joys – from crisp walks through fallen leaves to cosy evenings at home. For families living with Fragile X...

by Jane Oliver - Senior Families & Professional Advisor Caring for someone with Fragile X syndrome can bring additional pressures....

Sensory Frontloading: What is it and how can it help? Transitions can be tough for many children and young people with Fragile X...

from Jane Oliver, Senior Families and Professionals Advisor (Adult Enquiries). 🆕 New Quick Guides to Adult Life with Fragile X Syndrome...