As autumn has settled in and the new school year is firmly in progress, it’s a good time to reflect on how young people connect with one another, both in person and online. For many, friendships and peer connections bring joy and belonging. But for others, especially children and young people with additional needs, social interactions can sometimes be complicated and even stressful. That’s why Anti-Bullying Week , coordinated each November across the UK, is such an important

by Jane Oliver - Senior Families & Professional Advisor Do you have a diagnosis of FXTAS and are struggling to find an appropriate exercise routine? There’s growing evidence showing just how important safe, regular exercise is if you have Fragile X-associated Tremor/Ataxia Syndrome (FXTAS). FXTAS is sometimes described as a “use it or lose it” condition, which can sound harsh, but it simply highlights how vital movement is in maintaining strength and function. Exercising regu

Autumn brings so many seasonal joys – from crisp walks through fallen leaves to cosy evenings at home. For families living with Fragile X...

by Jane Oliver - Senior Families & Professional Advisor Caring for someone with Fragile X syndrome can bring additional pressures....

Sensory Frontloading: What is it and how can it help? Transitions can be tough for many children and young people with Fragile X...

from Jane Oliver, Senior Families and Professionals Advisor (Adult Enquiries). 🆕 New Quick Guides to Adult Life with Fragile X Syndrome...

✏️ Back to School: Helping You and Your Child Feel Prepared As we begin the summer holidays, many families will already be thinking ahead...

Moving from ESA to Universal Credit? Here’s what you need to know. If you or someone in your family is on income-related Employment and...

For many families, the summer break is a welcome chance to rest and recharge, but for children and young people with Fragile X Syndrome...

We know that sleep can be a major challenge for many families affected by Fragile X Syndrome. Whether it’s trouble falling asleep, waking...