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Financial Information for Supporting Families
by Jane Oliver - Senior Families & Professional Advisor Caring for someone with Fragile X syndrome can bring additional pressures....
Sep 25


Sensory Frontloading
Sensory Frontloading: What is it and how can it help? Transitions can be tough for many children and young people with Fragile X...
Sep 11


Quick Guides - Adult Life with FX
from Jane Oliver, Senior Families and Professionals Advisor (Adult Enquiries). 🆕 New Quick Guides to Adult Life with Fragile X Syndrome...
Aug 19


Back to School: Helping You and Your Child Feel Prepared
✏️ Back to School: Helping You and Your Child Feel Prepared As we begin the summer holidays, many families will already be thinking ahead...
Aug 6


Understanding the Move from ESA to UC
Moving from ESA to Universal Credit? Here’s what you need to know. If you or someone in your family is on income-related Employment and...
Jul 16


Supporting Your Child Through the School Holidays
For many families, the summer break is a welcome chance to rest and recharge, but for children and young people with Fragile X Syndrome...
Jul 8


Let’s Talk About Sleep (and Fragile X)
We know that sleep can be a major challenge for many families affected by Fragile X Syndrome. Whether it’s trouble falling asleep, waking...
Jul 1


Preparing for the next academic year...
As we have now entered the summer term, thoughts for many will be on preparing for the new academic year. For some children, things may...
Jun 26, 2024


The New School Year -Getting Ready for the Autumn Term
Before we know it, the school summer holidays will be here, and it will be another change of routine for your child. It will then be the...
Jun 21, 2023


Sensory issues and strategies to help: Week 5 (other factors, and bringing it all together)
In week 5 of her blog series on sensory issues, Caroline (Families & Professionals Advisor, child enquiries) brings it all together.
Mar 2, 2023
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