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Anti-Bullying Week 2025: 10th –14th November
As autumn has settled in and the new school year is firmly in progress, it’s a good time to reflect on how young people connect with one another, both in person and online. For many, friendships and peer connections bring joy and belonging. But for others, especially children and young people with additional needs, social interactions can sometimes be complicated and even stressful. That’s why Anti-Bullying Week , coordinated each November across the UK, is such an important
5 days ago


Staying Active with FXTAS: Finding the Right Exercise Routine
by Jane Oliver - Senior Families & Professional Advisor Do you have a diagnosis of FXTAS and are struggling to find an appropriate exercise routine? There’s growing evidence showing just how important safe, regular exercise is if you have Fragile X-associated Tremor/Ataxia Syndrome (FXTAS). FXTAS is sometimes described as a “use it or lose it” condition, which can sound harsh, but it simply highlights how vital movement is in maintaining strength and function. Exercising regu
7 days ago


🎃 Enjoying Autumn and Halloween with Fragile X
Autumn brings so many seasonal joys – from crisp walks through fallen leaves to cosy evenings at home. For families living with Fragile X...
Oct 7


Financial Information for Supporting Families
by Jane Oliver - Senior Families & Professional Advisor Caring for someone with Fragile X syndrome can bring additional pressures....
Sep 25


Sensory Frontloading
Sensory Frontloading: What is it and how can it help? Transitions can be tough for many children and young people with Fragile X...
Sep 11


Quick Guides - Adult Life with FX
from Jane Oliver, Senior Families and Professionals Advisor (Adult Enquiries). 🆕 New Quick Guides to Adult Life with Fragile X Syndrome...
Aug 19


Back to School: Helping You and Your Child Feel Prepared
✏️ Back to School: Helping You and Your Child Feel Prepared As we begin the summer holidays, many families will already be thinking ahead...
Aug 6


Understanding the Move from ESA to UC
Moving from ESA to Universal Credit? Here’s what you need to know. If you or someone in your family is on income-related Employment and...
Jul 16


Supporting Your Child Through the School Holidays
For many families, the summer break is a welcome chance to rest and recharge, but for children and young people with Fragile X Syndrome...
Jul 8


Let’s Talk About Sleep (and Fragile X)
We know that sleep can be a major challenge for many families affected by Fragile X Syndrome. Whether it’s trouble falling asleep, waking...
Jul 1
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