Upcoming Events
MathMIND Webinar
Online● Thursday 5th June 2025● 19.00 to 19.30 (Q&A 19.45)
Numbers on the Mind: Unlocking Early Numeracy in Fragile X – What We Know, What We’re Missing, and Why It Matters. Numeracy skills shape so much of daily life—from managing money, catching the right bus to opening doors to meaningful engagement with the outside world.
Join the MathMIND team for a focused webinar where we’ll explore the latest insights into early numeracy development in boys and girls with Fragile X.
Please contact the Fragile X Society through our info@fragilex.org.uk to attend this online event and we will book your place!
FX Conference 2025 - CLOSED
Novotel Edinburgh Park● Saturday 22nd March 2025
Registration for our first conference of 2025 alongside the Patrick Wild Centre on 22nd March, is now OPEN. For further information and to register your attendance please:-
Annual General Meeting 2024
Virtual Event ● Monday 16th September 2024 ● 19.00
For the log in details of the online event please email info@fragilex.org.uk
Fragile X Conference
Midlands Arts Centre, Birmingham ● Saturday 24h September 2022
Presentations and Q&A sessions
Family Weekend and AGM
Thomley ● Saturday 18th and Sunday 19th June 2022
Family Weekend at Thomley; and our AGM.
Thinking Ahead: Planning for the Future
Virtual Event ● Thursday 17th February 2022
With Christine Towers of Together Matters
Fragile X Conference and AGM
Virtual Event ● Saturday 25th September 2021
Presentations and Q&A sessions by Dr Sundus Alusi (FXTAS), Dr Hayley Crawford and Dr Andy Stanfield (research update) and the Challenging Behaviour Foundation; and our AGM.
FXTAS Workshop: Fragile X-Associated Tremor/Ataxia Syndrome (FXTAS)
Virtual Event ● Thursday 10th June 2021
Presentation and Q&A session by Dr Sundus Alusi.
Easter Virtual Coffee Morning
Virtual Event ● Saturday 3rd April 2021
A chance to get together over a coffee and connect with friends old and new.
Introduction to Supporting Siblings of Children with Fragile X Syndrome
Virtual Event ● Tuesday 26th January 2021
Sibs (the renowned sibling support charity) discussed some ways to support and advise families with brothers and sisters of children affected by Fragile X syndrome, and ensure siblings’ individual needs are met. There are further resources from this session in our ‘Siblings’ blog-post series:
What Means are Available to Protect your Loved Ones?
Virtual Event ● Tuesday 9th March 2021
Hosted by Richard Guy, Senior Associate at Birketts Legal, this online event discussed how you can help your loved ones with making decisions and how best to prepare your own affairs. Q&A sessions allowed attendees to ask Richard further questions.
Christmas Celebration 2020
Virtual Event ● Saturday 12th December 2020
An informal coffee morning to celebrate Christmas together.
Fragile X Awareness Day Q&A Event
Virtual Event ● Saturday 10th October 2020
This Q&A event with Dr Andrew Stanfield and Dr Hayley Crawford discussed updates on the latest Fragile X research and answered members’ questions.
Annual General Meeting 2020
Virtual Event ● Tuesday 22nd September 2020
Returning Safely to School
Virtual Event ● Tuesday 25th September 2020
Caroline Pringle, Families and Professionals Advisor (Child Enquiries), presented some top tips and best practice to guide a child returning safely to school. Further guidance can be found in the video and blog post ‘Going Back to School and How to Support Your Child’.
Fragile X Conference, plus AGM
University of Birmingham Medical School ● Saturday 7th September 2019
A day of talks from leading experts in Fragile X discussing topics which included adulthood, Fragile X-Associated Tremor/Ataxia Syndrome (FXTAS), gene editing, as well as updates on the latest Fragile X research.
Fragile X Family Day 2019
Thomley Centre, Buckinghamshire ● Saturday 11th May 2019
A day of workshops, talks and fun at this wonderful venue.
Fragile X Family Conference 2018
Thomley Centre, Buckinghamshire ● 29/30th September 2018
A new-style family weekend conference! Lots of exciting speakers and workshops, all in an inclusive environment at the Thomley Centre.
