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Upcoming Events
Throughout the year we organise a variety of unique events, such as our family conferences, awareness day activities, and more! Details of new events coming soon.
Looking for more ways to get involved?
Past Events
Join us for a day of talks from leading experts in Fragile X discussing topics including: adulthood, Fragile X-Associated Tremor/Ataxia Syndrome (FXTAS), gene editing, as well as updates on the latest Fragile X research. Find out more and book here.
Join us for a day of workshops, talks and fun at this wonderful venue. Find out more and book here
Join us for a new-style family weekend conference! Lots of exciting speakers and workshops, all in an inclusive environment at the Thomley Centre. Find out more about this exciting event on our dedicated micro site here
Join us for a new-style family weekend conference! Lots of exciting speakers and workshops, all in an inclusive environment at the Thomley Centre. Find out more about this exciting event on our dedicated micro site here
Fragile X Research Workshop
14th March 2017
In this exciting collaboration with the University of Oxford we brought together researchers in the UK interested in Fragile X Syndrome research ,along with families, to investigate ways of working more closely in partnership to address key issues facing individuals and families living with Fragile X.
Last year we focussed on the key topic of Fragile X Premutation carriers including: FXTAS, associated freatures and family planning. We covered these topics through a mixture of expert speakers, the latest research and family stories. Our conferences are always a great place to meet with others. Information about this years events will be coming soon!
Through the day we focussed on some of the key practical issues facing children and adults with Fragile X, including education and employment. The day included a mix of family stories, overviews of Fragile X and speakers talking about accessing services. As well as being a day full of useful information, it was also a great opportunity to meet with others living with or interested in Fragile X.
