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Events

Throughout the year, we run a range of events including family conferences, awareness day activities, webinars, and more. Please check back regularly as details of upcoming events are added throughout the year.

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Upcoming Events

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Annual General Meeting 2026

​Virtual Event ● Thursday 17th September 2026 ● 19.30​

Online joining details will be shared soon. In the meantime, please register below:

https://www.eventbrite.com/e/1998425879602?aff=oddtdtcreator

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FX Conference 2026 

​Novotel Edinburgh Park● Saturday  21st March 2026

​Registration for our 2026 conference is opening soon.

 

We are delighted to be hosting our third consecutive Fragile X Conference alongside the Patrick Wild Centre, taking place on 21st March 2026.

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Annual General Meeting 2025

​Virtual Event ● Thursday 18th September 2025 ● 19.00​

Log in details of the online event will be available soon BUT PLEASE REGISTER HERE:- https://www.eventbrite.co.uk/e/fragile-x-society-agm-2025-tickets-1586429516389

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MathMIND Webinar 

​Online● Thursday 5th June 2025● 19.00 to 19.30 (Q&A 19.45)

Numbers on the Mind: Unlocking Early Numeracy in Fragile X – What We Know, What We’re Missing, and Why It Matters.  Numeracy skills shape so much of daily life—from managing money, catching the right bus to opening doors to meaningful engagement with the outside world. 

 

Join the MathMIND team for a focused webinar where we’ll explore the latest insights into early numeracy development in boys and girls with Fragile X.

 

Please contact the Fragile X Society through our info@fragilex.org.uk to attend this online event and we will book your place!

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FX Conference 2025 - CLOSED

​Novotel Edinburgh Park● Saturday  22nd March 2025 

​Registration for our first conference of 2025 alongside the Patrick Wild Centre on 22nd March, is now OPEN.  For further information and to register your attendance please:-

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Annual General Meeting 2024

Virtual Event ● Monday 16th September 2024 ● 19.00

For the log in details of the online event please email info@fragilex.org.uk

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