Supporting siblings of children with Fragile X

Updated: Dec 2, 2021

In the final instalment of our 'Siblings' blog series, a follow-up to our online workshop for parents, and additional resources



Last month, Sibs (the charity for brothers and sisters of disabled children) hosted an online webinar for Fragile X Society members on 'Supporting siblings of children with Fragile X'.


Sibs have provided some further resources below as a follow-up, which we hope you will find helpful. If you have any further questions or would like support, please get in touch with Louise at Sibs.


For parents who attended the session, there is an online feedback survey which we would be grateful if you could complete, here.


With thanks to Clare Kassa (CEO) and all the team at Sibs for these resources.





Supporting siblings of children with Fragile X - Handouts

You can download the handouts from our workshop for parents on supporting siblings of children with Fragile X here.










Attention Jar Activity


This activity will help you give regular attention to young siblings and will encourage them to ask for your attention in a positive way.


You can download instructions for making your own attention jar here.











Sibs Talk - primary school intervention


Sibs Talk is a one-to-one support intervention for pupils in Key Stage 2 who are growing up with a brother or sister who is disabled or has special educational needs or a serious long-term condition.


Many schools are working with pupils who are having problems at school because of their sibling experiences. Sibs Talk has been specifically designed, in consultation with siblings and schools, to help your school support these siblings. Find out more here.






Siblings in Schools project - information for school staff


A new project from Sibs to identify and support children and young people in school that are growing up with a brother or sister who is disabled or has special educational needs or a serious long-term condition.


You can download an information leaflet about the project here.







Booklist

A booklist for supporting siblings of children with disabilities.








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