Supporting siblings of children with Fragile X

In the final instalment of our 'Siblings' blog series, a follow-up to our online workshop for parents, and additional resources



Last month, Sibs (the charity for brothers and sisters of disabled children) hosted an online webinar for Fragile X Society members on 'Supporting siblings of children with Fragile X'.


Sibs have provided some further resources below as a follow-up, which we hope you will find helpful. If you have any further questions or would like support, please get in touch with Louise at Sibs.


For parents who attended the session, there is an online feedback survey which we would be grateful if you could complete, here.


With thanks to Clare Kassa (CEO) and all the team at Sibs for these resources.





Supporting siblings of children with Fragile X - Handouts

You can download the handouts from our workshop for parents on supporting siblings of children with Fragile X here.










Attention Jar Activity


This activity will help you give regular attention to young siblings and will encourage them to ask for your attention in a positive way.


You can download instructions for making your own attention jar here.











Sibs Talk - primary school intervention


Sibs Talk is a one-to-one support intervention for pupils in Key Stage 2 who are growing up with a brother or sister who is disabled or has special educational needs or a serious long-term condition.


Many schools are working with pupils who are having problems at school because of their sibling experiences. Sibs Talk has been specifically designed, in consultation with siblings and schools, to help your school support these siblings. Find out more here.






Siblings in Schools project - information for school staff


A new project from Sibs to identify and support children and young people in school that are growing up with a brother or sister who is disabled or has special educational needs or a serious long-term condition.


You can download an information leaflet about the project here.







Booklist

A booklist for supporting siblings of children with disabilities.








Sleep Survey

An online sleep survey for siblings aged 12-25 is being run by University College London's Institute of Education. This study seeks to find out the sleep experiences of and experiences of loneliness in siblings with a brother or sister with a disability and/or chronic illness, as well as any support needs that siblings might have. Find out more, and access the survey, here.



Reading of 'Perfect' (Nicola Davies and Cathy Fisher) by Tessa Bide

View the Sunday Bedtime Story read by Tessa Bide below:




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