A Rare Find is released this Sunday, 5th November 2023
The UK currently screens newborns for just 9 rare but serious conditions whereas the USA tests for up to 59. Local filmmaker John Lee...
A Rare Find is released this Sunday, 5th November 2023
Leicester Fragile X Hub
Rare Disease Day: 28 February 2023
We are hiring!
Farewell from Mark Smith
Newborn bloodspot screening
Calling all members in Northern Ireland!
Our new legacy programme
The IGPrare European study