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Fragile X Syndrome Workshop Invitation
We are delighted to let you know about a forthcoming International Workshop on Fragile X Syndrome on June 20th 2025 in Padua, organised...
23 hours ago
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Dr Andrew Stanfield - Clinical Research
In March 2025, we hosted our Edinburgh conference for the second consecutive year. The event was highly successful. We extend our...
May 1
66 views


FXTAS - Dr Sundus Alusi
Thank you all for attending the conference and for playing such an important role in making it a truly meaningful and inspiring event....
May 1
66 views


28th February 2025 - Rare Disease Day
Increasing awareness and driving change for the 300 million individuals globally affected by a rare disease, along with their families...
Feb 26
36 views


Glasgow Bakers
Steve Harris, the FX Chair, was invited by the Deacon at the Trades House of Glasgow to receive a cheque. The Bakers organized a charity...
Feb 19
43 views


FX Ambassador - Olia Hercules
We are delighted to share with you the news that Olia Hercules has agreed to become an Ambassador for the Fragile X Society. Olia is a...
Jan 30
53 views


Touch FX
Patrick Wild Centre are looking for volunteers with full mutation fragile X syndrome (aged 3-45) to join their study that aims to better...
Jan 21
82 views


Gemma's Fundraiser for Fragile X
We would like to say a massive thank you to Gemma, Andy, their son and all of their friends who took part in the Sutton Coldfield fun run...
Jun 12, 2024
99 views


Birmingham Conference 2024
We were delighted to see and welcome so many of you to our Fragile X Society Conference held at the Priory Rooms Conference in Birmingham...
Jun 6, 2024
99 views


A Rare Find is released this Sunday, 5th November 2023
The UK currently screens newborns for just 9 rare but serious conditions whereas the USA tests for up to 59. Local filmmaker John Lee...
Nov 1, 2023
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