Nov 1, 2023A Rare Find is released this Sunday, 5th November 2023The UK currently screens newborns for just 9 rare but serious conditions whereas the USA tests for up to 59. Local filmmaker John Lee...
Jun 21, 2023Leicester Fragile X Hub Today I’d like to share some really exciting news about plans to develop a Specialist Fragile X Hub in Leicester and how you can be...
Feb 28, 2023Rare Disease Day: 28 February 2023NEW: watch our animated video raising awareness of Fragile X and associated conditions, to mark Rare Disease Day 2023.
Feb 8, 2023We are hiring!We are seeking to recruit a part-time Office Administrator to work at our office in Great Dunmow Essex. Find out more including how to apply
Jan 5, 2023Farewell from Mark SmithDirector, Mark Smith, says goodbye to the Fragile X Society Board, and shares what inspired him to get involved.
Jan 3, 2023Newborn bloodspot screeningAn update from the Chair of our Board of Directors, Kirsten Johnson
Nov 30, 2022Calling all members in Northern Ireland!Would you like to help shape support for Fragile X families in Northern Ireland?
Nov 15, 2022Our new legacy programmeFragile X Society has teamed up with Freewills.co.uk to offer a free Will-writing service for our members.
Nov 8, 2022The IGPrare European studyIGPrare European study recently explored experiences of families when sharing their diagnosis with family members: what were the results?