Case Studies

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We are proud of the work we do in supporting individuals and families affected by Fragile X and feel it is important to share case studies which demonstrate the ways in which we have helped our members and others. As the only UK-based charity dedicated to Fragile X, we pride ourselves on providing tailored information and support of the highest quality.

 

Are you a member and interested in sharing your story and experiences? To get in touch you can complete our contact form, email info@fragilex.org.uk, or call 01371 875100. 

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Claire's Story

"I felt like there was no one else out there".

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Grace's Story

Prior to contacting the Fragile X Society, Grace didn’t know what to expect from her daughter's diagnosis, or how to help her.

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Sally's Story

"At first, it felt like a bomb had exploded".

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Helen's Story

"You ring the helpline and you feel like you're a part of a big family".

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Isabella's Story

"I love my child more than I love myself".

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Kathryn's Story

"I can see that the future for the younger generation of Fragile X

is far more positive".

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Sarah's Story

"Fragile X individuals can make their mark on the world".

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