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Personal Stories

No information leaflet can ever describe what life with Fragile X is like. We are proud to share personal stories from individuals with Fragile X, their families and loved ones about their experiences, including the ups and the downs.

We strive to share a diverse range of experiences and would love to hear your story. If you are interested in sharing a piece, then please do contact us.

Easter Fun in The Sun

Easter Fun in The Sun

Easter Fun in The Sun

Thank you to Sabrina, one of our FX members, who sent in this lovely picture of her children over the Easter Holidays having some "Easter...

Apr 301 min read

Klay & Kruz Easter Fun

Klay & Kruz Easter Fun

Klay & Kruz Easter Fun

Thank you to Sarah for sending in these lovely photos of her two sons, Klay and Kruz, who are both living with Fragile X syndrome. Klay,...

Apr 241 min read

In Memory of Vicki

In Memory of Vicki

In Memory of Vicki

We extend our heartfelt thanks to Katrina, her family, and friends for their generous donation of £470 collected at Vicki's funeral. Our...

Apr 241 min read

Fragile X : Signs & Symptoms

Fragile X : Signs & Symptoms

Fragile X : Signs & Symptoms

Sabrina is a parent of a child with Fragile X and a medical professional. She appreciates the complexities of understanding the...

Feb 191 min read

Michael Supports Fragile X

Michael Supports Fragile X

Michael Supports Fragile X

Michael kindly shared his story of why he chose to support the Fragile X Society.

Aug 22, 20241 min read

Dennis at the Cinema - Sheffield

Dennis at the Cinema - Sheffield

Dennis at the Cinema - Sheffield

Dennis is passionate about movies and coaching football. For him watching movie in cinema, TV, computer, laptop, IPad and phone are...

May 29, 20243 min read

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