Celebrating the Moments That Matter

In the lead up to our recent conference, centred around living with Fragile X, Sabrina Kinsella reached out to families across our community with a simple but powerful idea, to capture meaningful, everyday moments with their loved ones with Fragile X.

The response was truly heart warming, with families generously sharing clips that reflected joy, connection and the unique personalities of their children and family members.

Sabrina brought these together into a beautiful video, created to celebrate the often unseen moments that mean so much to families, and the reasons that bring our community together.

Unfortunately, we didn’t manage to share the video on the day as planned, but we are really pleased to be able to share it now.

We would like to say a heartfelt thank you to Sabrina for the care, time and thought she put into creating this, and to all the families who contributed so openly. Your moments have created something very special.

Together, these stories remind us not only of the challenges, but also of the many joys of living with Fragile X.