Annual General Meeting

Our Annual General Meeting (AGM) is an important occasion in the Fragile X Society's year. It is an opportunity to reflect upon the successes and challenges from the previous year, to review and approve the charity's financial accounts and for the membership to vote on key issues, including electing members to the Board of Directors. Our Board volunteer their time to lead and govern the charity.


If you are interested in joining our Board, you can find out how to become a Director. Following an informal discussion with our Chair, Kirsten Johnson, a formal process must be followed which includes completing a nomination form.

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Notice of AGM

In 2021, our AGM will take place on Saturday 25 September (virtual meeting). This year, our AGM will form part of our Virtual Conference and the theme will be 'Looking to the Future'. We're delighted to be hosting some wonderful speakers to present the latest information and research about key aspects of Fragile X. Highlights include sessions on FXTAS, challenging behaviour, and two research workshops. You're welcome to join us for all or part of the day!


The agenda for the day's events, Treasurer’s report, signed accounts and previous minutes are all available to download below. The AGM and Virtual Conference will be held online; please register to receive joining instructions at the bottom of this page.


Proxy Forms

If you are a member of the charity but are unable to attend the AGM, you can submit a proxy form so that another member of the charity may vote on your behalf.

Annual Review

A copy of our latest Annual Review may be downloaded here. If you would like a hard copy of our Annual Review posted to you, please email

The 2020-2021 Annual Review will be available in due course – please check back soon.


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