Would you like to network with other members and families in Wales?
Here at the Fragile X Society, we want to significantly improve the diagnosis, support and care packages for people with Fragile X Syndrome (FXS) and their families in Wales. In addition, if possible, we would like to help set up support groups for you and a network for sharing information and advice on dealing with the sometimes-overwhelming range of challenges that you face.
We recognise that different places within the UK have different health and social care services in place, so we would like to customise our support that we provide to you specifically to meet the needs that you have in Wales.
To do this successfully, we would like to begin by setting up a couple of meetings (one in North Wales, one in the South) to discuss what needs to be done and how we can do it!
One of the above trustees is likely to telephone you in the next few weeks to give you a further update.
Fragile X Society