Louise Clarke shares the exciting news that daughter Emily has been selected to represent Great Britain in tennis at the Special Olympics

Would you like to help shape support for Fragile X families in Northern Ireland?

In this first instalment of our new series, Sally and Jim Irvine share this family update about sons Jamie (40) and Stephen (35)

Jane Oliver has some ideas to help you manage the festive season, & a checklist of some common triggers of 'challenging behaviour' in adults

Would you like to network with other members and families in Wales at a support group? Let us know if you'd like to join our meetings.

Videos of the talks from our Conference 2022 at Birmingham are available to view on our YouTube channel. Click below to watch.

Today is International Fragile X Awareness Day. But what is life really like with Fragile X? Watch our special family stories to find out.

Caroline Pringle, Families and Professionals Advisor (Child Enquiries), shares some strategies for coping with the festive season.

Frank and John undertook a gruelling challenge at the weekend in the form of the 15km Tough Mudder North West, in aid of Fragile X Society.

Katrina sent us this update and pictures from her family's summer trip to the National Fragile X Foundation (NFXF) conference in San Diego.