Emily to represent Great Britain in Special Olympics 2023
Louise Clarke shares the exciting news that daughter Emily has been selected to represent Great Britain in tennis at the Special Olympics
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Nov 30, 2022
Calling all members in Northern Ireland!
Would you like to help shape support for Fragile X families in Northern Ireland?
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Nov 29, 2022
Where are they now? with the Irvines
In this first instalment of our new series, Sally and Jim Irvine share this family update about sons Jamie (40) and Stephen (35)
248 views
Nov 3, 2022
Seasonal checklist for adults
Jane Oliver has some ideas to help you manage the festive season, & a checklist of some common triggers of 'challenging behaviour' in adults
195 views
Nov 3, 2022
Calling all members in Wales!
Would you like to network with other members and families in Wales at a support group? Let us know if you'd like to join our meetings.
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Oct 27, 2022
Video Presentations from our Fragile X Society Conference 2022 in Birmingham
Videos of the talks from our Conference 2022 at Birmingham are available to view on our YouTube channel. Click below to watch.
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Oct 10, 2022
International Fragile X Awareness Day 2022: 10 October
Today is International Fragile X Awareness Day. But what is life really like with Fragile X? Watch our special family stories to find out.
215 views
Oct 5, 2022
Twelve top tips for Christmas
Caroline Pringle, Families and Professionals Advisor (Child Enquiries), shares some strategies for coping with the festive season.
117 views
Sep 21, 2022
Frank and John's Tough Mudder
Frank and John undertook a gruelling challenge at the weekend in the form of the 15km Tough Mudder North West, in aid of Fragile X Society.
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Aug 17, 2022
Our family trip to the NFXF Conference, San Diego
Katrina sent us this update and pictures from her family's summer trip to the National Fragile X Foundation (NFXF) conference in San Diego.
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