NEW: watch our animated video raising awareness of Fragile X and associated conditions, to mark Rare Disease Day 2023.

Director, Mark Smith, says goodbye to the Fragile X Society Board, and shares what inspired him to get involved.

Would you like to help shape support for Fragile X families in Northern Ireland?

Would you like to network with other members and families in Wales at a support group? Let us know if you'd like to join our meetings.

Videos of the talks from our Conference 2022 at Birmingham are available to view on our YouTube channel. Click below to watch.

Our Christmas Cards have arrived! Available from our online shop - please order early!

Today is International Fragile X Awareness Day. But what is life really like with Fragile X? Watch our special family stories to find out.

Caroline Pringle, Families and Professionals Advisor (Child Enquiries), shares some strategies for coping with the festive season.

Frank and John undertook a gruelling challenge at the weekend in the form of the 15km Tough Mudder North West, in aid of Fragile X Society.

Katrina sent us this update and pictures from her family's summer trip to the National Fragile X Foundation (NFXF) conference in San Diego.