35 Years of Support: Meet Sabrina Kinsella, Fragile X Ambassador

As part of the Fragile X Society’s 35th Anniversary, we’re proud to introduce Sabrina Kinsella a passionate parent, and one of our dedicated Fragile X Ambassadors.

In a brand-new video created to mark this milestone year, Sabrina shares her personal experience of raising a child with Fragile X Syndrome and the impact the Society has had on her family’s journey over the past four years.

“When I first found the Fragile X Society, I felt like I could finally breathe. It wasn’t just about having information — it was about being understood.”

Sabrina speaks openly about the day-to-day realities, the emotional ups and downs, and how finding the Society gave her a sense of direction, hope, and connection. She also highlights how important real-life stories are in raising awareness and helping others feel less alone.

Since becoming more involved with the Society, Sabrina has shared her experiences across social media, where she creates honest and relatable content that connects with parents, professionals, and families across the UK and beyond.

She’s also played a key role in Fragile X Awareness Days, helping to spread the word through videos, fundraising, and encouraging others to get involved.

“Telling our stories helps people understand Fragile X — not just the diagnosis, but the people behind it.”

Why Donations Matter

As Sabrina explains in the video, donations play a vital role in helping the Society continue its work. From one-to-one family support, to free resources and awareness campaigns, every contribution helps the Society reach more people and offer support when it's needed most.

We’re so grateful to Sabrina for sharing her voice and helping us celebrate this special year.

Want to share your story? We’d love to hear from you. Get in touch at info@fragilex.org.uk