UK National Screening Committee - Consultation on Fragile X Screening

The UK National Screening Committee (UK NSC) has launched a consultation on screening for Fragile X. This is an important opportunity for individuals, families, professionals and organisations to share their views and help shape future screening recommendations.

You can read the full consultation document using the link provided on the UK NSC website. The committee welcomes feedback from anyone with an interest in Fragile X or screening policy.

The deadline for responses is 16 February 2026.

All submissions will be anonymised and published once the UK NSC has made its final recommendation.

If you would like to learn more about the UK NSC’s work and how evidence is reviewed, further information is available on their website.

If you have questions about the consultation process, or if you wish to opt out of future policy consultation updates, you can contact the UK NSC team at uknsc@dhsc.gov.uk

UK National Screening Committee - https://www.gov.uk/government/organisations/uk-national-screening-committeeGOV.UK