A few highlights from our Family Weekend at the fantastic Thomley in Worminghall. Thanks to everyone who joined us!

Caroline Pringle, Families and Professionals Advisor for Child Enquiries, shares some tips for keeping your children safe online.

Luke Atterbury and friend, Jas, have recently tackled not one, but two, challenges in aid of the Fragile X Society

Mencap would like to invite people with a learning disability to take part in their 2022 Big Learning Disability Survey! Have your say:

Father and daughter team run 10k race in aid of Fragile X Society

Kunal wanted to share with you what he most enjoyed on his recent holiday to Dubai!

In April 2022, the term ‘mental retardation’ was officially removed from the expanded name of FMR1, and more inclusive names adopted.

Caroline Pringle, our Families and Professionals Advisor for Child Enquiries, shares some tips for the new school year

Launch of Fragile X International (FraXI), a new organisation for families and healthcare professionals who live or work with Fragile X

New and inclusive terminology to be adopted in scientific and clinical literature, improving respect for neurodiversity

Our Fragile X Society here in the UK is part of a growing network of countries dedicated to supporting the Fragile X Community and I...

What are they and how can they be addressed by researchers of medication trials for Fragile X Syndrome?

Carers and their children with learning disabilities invited to share their experiences of COVID-19 pandemic using fun, inclusive activities

Caroline Pringle, Families and Professionals Advisor (Child Enquiries) shares top tips on using visual aids to support your child.

Jo shares her story of son Dennis' participation in the Neuro-GD Study run by Dr Andy Stanfield and colleagues at the Patrick Wild Centre

New research paper published in The Lancet which demonstrates that whole genome sequencing (WGS) can quickly detect neurological conditions

Measuring electrical activity in the brain may help in development of drug therapies for Fragile X in new study from the Patrick Wild Centre

One of our members shared this story about her son's employment journey

One of our Directors, John Quaye, is running the Boston Marathon on behalf of Fragile X Society on 18 April this year - his 14th marathon!

Join us on online on Thurs 17 Feb 7.30pm for ‘Managing transitions and planning for the future', with Christine Towers of Together Matters