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Supermarket Shopping: please sign our letter!
Supermarket shopping for individuals with learning disabilities and their families/carers: sign our letter!
Jun 2, 2020
137 views
Anne Donohoe: my journey as a therapist, educator and mother
Anne's adult son, Andrew, has Fragile X Syndrome. Here, she tells us about their life in the Far East, and shares her blog and resources...
May 21, 2020
539 views
Going Back to School
Going back to school is something which is likely to be on many families' minds at the moment. Here are links to some helpful resources.
May 20, 2020
95 views
Coach Deno and Corona Lockdown
Jo shares her experiences of lockdown with son, Dennis.
May 14, 2020
1,546 views
Education, Health and Care Plans
Entitlement for children and young people with Special Educational Needs during Covid 19
May 7, 2020
165 views
We need your help for Jeans for Genes Day!
Jeans for Genes Day: can you help? Get involved by making a video clip!
May 7, 2020
260 views
Darcy's 26 Hour 2.6 Tent Challenge
Darcy stayed in a tent in her garden for 26 hours, for her 2.6 Challenge
May 6, 2020
53 views
Our Fantastic 2.6 Challenge Fundraisers!
This weekend saw the launch of the 2.6 Challenge, a campaign to save the UK's charities. Here are some challenges by our supporters.
Apr 30, 2020
127 views
Connor's 2.6 Challenge Run and Ride
Connor Evans, age 12, decided to take part in the 2.6 challenge on Sunday 26th April 2020, to try and raise money for The Fragile X Society.
Apr 29, 2020
87 views
Welcoming Pete Richardson as Managing Director
Pete Richardson joins The Fragile X Society as Managing Director from 5 May 2020
Apr 28, 2020
380 views
Life During Lockdown
Diana shares her experiences of life during lockdown with her son Raphael, who has Fragile X.
Apr 28, 2020
280 views
What will your 2.6 Challenge be? Help save UK charities... including the Fragile X Society!
Take on the 2.6 challenge and raise funds to save our charity!
Apr 16, 2020
184 views
The Hotfoot Dance Club
Julie shares the story of her keep-active dance videos featuring her son, Danny, who has Fragile X.
Apr 14, 2020
535 views
Birthday Celebrations in Lockdown
Birthday celebrations in Lockdown
Apr 9, 2020
424 views
Supporting Children with Fragile X Syndrome during Lockdown: Some Tips
Supporting children with Fragile X Syndrome during lockdown: some tips
Apr 8, 2020
457 views
Update on benefits: coronavirus
Jane Oliver, Senior Families and Professionals Advisor (Adult Enquiries), highlights some recent changes to benefits
Apr 2, 2020
1,267 views
We're all at home - help!
Some tips for staying at home from Jane Oliver, Senior Families and Professionals Advisor at The Fragile X Society
Apr 1, 2020
348 views
Open letter from Minister Vicky Ford to the SEND Sector
Parliamentary Under-Secretary of State for Children and Families, Vicky Ford MP, has issued an open letter for children and young people wit
Mar 25, 2020
219 views
Ava and Ella's hair donation
Tracy shares her story of daughters Ava and Ella's hair donation for the Little Princess Trust - and fundraising for The Fragile X Society
Mar 24, 2020
242 views
Cancelled: Family Weekend at Thomley, May 2020
Our planned Family Weekend at Thomley, May 2020, has been cancelled due to current situation with Coronavirus. Further details to follow.
Mar 12, 2020
42 views
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