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FUNdraising!
Please share your fundraising stories and photos with us!
Mar 25, 2021
Join us for our Easter Virtual Coffee Morning on Saturday 3 April at 10.30am
Join our Easter Virtual Coffee Morning to chat and connect with friends old and new!
Mar 23, 2021
Your child's sleep
Some strategies for supporting your child's sleep from Caroline Pringle, in the latest edition of her 'Snippets of Advice' blog series
Mar 10, 2021
Online Workshop from Birketts Solicitors: Tuesday 9 March 2021 at 7.30pm
'What legal means are available to protect your loved ones?' I am delighted to announce that on Tuesday 9 March 2021 at 7:30pm we will be...
Mar 9, 2021
Covid 19 vaccine prioritised for people with learning disabilities
All people on the Learning Disability Register to be prioritised for Covid-19 vaccine
Feb 24, 2021
Supporting siblings of children with Fragile X
Follow-up to our online workshop for parents, and additional resources.
Feb 23, 2021
A sibling's viewpoint: Anne and Nick's story
Anne shares her story of growing up with her brother Nick, who has Fragile X Syndrome
Feb 23, 2021
Spotlight on young siblings
Welcome to our new 'special edition' series of blog articles focusing on siblings. Here, Clare Kassa (CEO of Sibs) offers tips for parents.
Feb 23, 2021
Costello Medical
Digitally Developing and Diversifying the Fragile X Society: Costello Medical to develop our digital services
Feb 17, 2021
Going Back to school and How to Support Your Child
NEW: Download Caroline's presentation and video on 'Returning Safely to School' here.
Feb 17, 2021
Covid-19 Vaccinations
This week, I want to address the issue of vaccinations for people with Fragile X and their families. I know this is something that many...
Feb 17, 2021
'The best book I have read on Fragile X Syndrome'
A review of 'Mental Essence' by Emilie Weight from Jonathan Herring, Honorary Advisor to The Fragile X Society 'This book is the best...
Feb 2, 2021
Kunal Keeping Busy
Kunal’s story which was written before the current lockdown Kunal would like to share with you all what has been happening in his life...
Jan 28, 2021
Lola's Lockdown
Claire shared these lovely photos of her daughter Lola "Here we are again in lockdown number 3! We have found it a bit more of a...
Jan 26, 2021
Child Disability Payment pilot scheme areas in Scotland
In her statement to Parliament in November 2020, Shirley-Anne Somerville MSP, Cabinet Secretary for Social Security and Older People, set...
Jan 13, 2021
Covid-19 Update
Caroline Pringle, Families and Professionals Advisor (Child Enquiries) There is a wealth of information to support families during this...
Jan 13, 2021
Another lockdown with your children at home
Caroline Pringle, Families and Professionals Advisor (Child Enquiries) Well, we are in another lockdown; some of your children may be...
Jan 12, 2021
Online Workshop for Parents, from Sibs: Tuesday 26 January 2021 at 7.30pm
'Introduction to supporting siblings of children with Fragile X Syndrome' I am delighted to announce that on: Tuesday 26th January 2021...
Dec 15, 2020
Our services during Covid-19
How we can support you at this time: our helpline, website and online community are available
Dec 14, 2020
Digitally Developing and Diversifying the Fragile X Society Project 2021
An exciting opportunity to work with The Fragile X Society (part-time, temporary six month contract)
Dec 7, 2020
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