Digitally Developing and Diversifying the Fragile X Society
I am delighted to announce that Costello Medical have agreed to give their pro bono support to The Fragile X Society, to run a substantial project on our behalf to optimise our digital presence and services.
Given the adverse effects of the Covid-19 pandemic on the Charity sector, including the current postponement of face-to-face participation events, we feel that now it is time to make some positive changes and adapt our approach.
Whilst we will continue to provide the helpline and all our existing services (including Conferences once we are allowed to do so) we also want to adopt an enhanced digital and social media-based strategy.
This new project called “Digitally Developing and Diversifying the Fragile X Society” is focussed upon ensuring that we can communicate with you more effectively and grow our membership base through digital channels. In particular, we want to ensure we reach Black, Asian and Minority Ethnic (BAME) and other groups that may not be currently having their needs met. There are still many families in the UK that have been affected by Fragile X and don’t know about us and the services we offer. There are still many people that have not yet been diagnosed.
We want to change this situation. We want to ensure that as many people as possible are given the exact help and support that they need.
Costello Medical are a healthcare consultancy with a range of clients across the healthcare sector. Their headquarters is in Cambridge, UK, but they also have offices in the US, Singapore, and China. They are committed to giving back to local communities and sharing their expertise to help improve health and healthcare globally, including dedicating time to supporting pro bono projects for charity partners, which we will benefit from! In addition, they have an impressive track record and numerous accolades including being listed in the Top 100 Best Small Companies to Work for in the UK for the past 4 years and being given a Queen’s Award for Enterprise: International Trade in 2019.
Over the coming months, we hope to reach out for feedback from the Fragile X community as the project develops. If you have any immediate feedback for us to pass onto the Costello Medical team regarding the website, social channels, branding and presence please do get in touch with Kate or me.
We are all absolutely thrilled to have their support and look forward enormously to working with them to deliver this project for the Fragile X Community.