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Our services during Covid-19

Updated: Dec 17, 2021

Our services during this time

As we go into a third nationwide lockdown (in England), we know that it is an uncertain time and that you may have questions or concerns; please do get in touch with us. We are putting plans into action to keep our services available to you throughout this time. We are a small team and may not always have the answers immediately. But, as always, we will do our best to help.


You can reach our Families and Professionals Advisors via email ( or phone (01371875100). Our helpline will be available Tuesday, Wednesday, and Thursday, from 9am - 3.30pm.

Our online community

Whilst our face-to-face events are not going ahead, remember this great online community. You can find lots of information on our website; you can also follow our Facebook page (The Fragile X Society, UK), as well as finding us on Twitter and Instagram (@fragilexuk) - links are at the top of this page.

We want to hear from you!

Please do share your experiences with us to pass along to the rest of the Fragile X community! Any top tips or stories? Any useful resources which you have found? Please send them to us on social media or

Our very best wishes,

The Fragile X Society Team

5 November 2020


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