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Covid-19 Vaccinations
This week, I want to address the issue of vaccinations for people with Fragile X and their families. I know this is something that many...
Feb 17, 2021
'The best book I have read on Fragile X Syndrome'
A review of 'Mental Essence' by Emilie Weight from Jonathan Herring, Honorary Advisor to The Fragile X Society 'This book is the best...
Feb 2, 2021
Kunal Keeping Busy
Kunal’s story which was written before the current lockdown Kunal would like to share with you all what has been happening in his life...
Jan 28, 2021
Lola's Lockdown
Claire shared these lovely photos of her daughter Lola "Here we are again in lockdown number 3! We have found it a bit more of a...
Jan 26, 2021
Child Disability Payment pilot scheme areas in Scotland
In her statement to Parliament in November 2020, Shirley-Anne Somerville MSP, Cabinet Secretary for Social Security and Older People, set...
Jan 13, 2021
Covid-19 Update
Caroline Pringle, Families and Professionals Advisor (Child Enquiries) There is a wealth of information to support families during this...
Jan 13, 2021
Another lockdown with your children at home
Caroline Pringle, Families and Professionals Advisor (Child Enquiries) Well, we are in another lockdown; some of your children may be...
Jan 12, 2021
Online Workshop for Parents, from Sibs: Tuesday 26 January 2021 at 7.30pm
'Introduction to supporting siblings of children with Fragile X Syndrome' I am delighted to announce that on: Tuesday 26th January 2021...
Dec 15, 2020
Our services during Covid-19
How we can support you at this time: our helpline, website and online community are available
Dec 14, 2020
Digitally Developing and Diversifying the Fragile X Society Project 2021
An exciting opportunity to work with The Fragile X Society (part-time, temporary six month contract)
Dec 7, 2020
Fragile X Friday: please can you help us this Black Friday?
Thanks to your support as members of the Fragile X Society and some welcome grant successes this year we are delighted to have been able...
Nov 16, 2020
An open letter from Vicky Ford MP
Parliamentary Under-Secretary of State for Children and Families The latest letter (9 November 2020) from SEND Minister Vicky Ford MP in...
Nov 12, 2020
Our Fragile X Society Christmas Cards have arrived!
Our Fragile X Society Christmas Cards are now available to order from our online shop!
Oct 14, 2020
Fragile X Awareness Day 10 October 2020: Virtual Q&A Session
Fragile X Awareness Day 10 October 2020: Virtual Q&A session - video coming soon!
Oct 12, 2020
Face Coverings in Schools
Links to guidance throughout the UK on face coverings in schools
Sep 3, 2020
A silver lining: Christian's lockdown
Isabella shares her son Christian's lockdown activities.
Aug 24, 2020
Re-opening of adult day services and respite in Scotland
Re-opening of adult day services and respite in Scotland
Aug 6, 2020
Photographs: can you help?
Please can you help us by sending in photographs we may use?
Jul 29, 2020
An open letter from Vicky Ford MP and Helen Whately MP
Open letter of 21 July 2020 from Vicky Ford MP and Helen Whately MP
Jul 23, 2020
Goodbye(-ish)! A note from Becky our out-going CEO.
Goodbye(ish)! A note from Becky, our outgoing CEO
Jul 15, 2020
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