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A Serious Case of Empty Nest Syndrome!
Edel Harris shares the story, of son Ross gaining independence, and moving in to his own flat. "My son Ross is 23 and was diagnosed with...
Oct 12, 2021
The Carroll Family: Journey with a Happy Ending
Zoe Carroll shares her story, from diagnosis to family life now. "We received Charlie's diagnosis on his second birthday. The world...
Oct 11, 2021
John's Story
In this story we hear from Lorraine Peacock, writing about her brother, John. "Our Fragile X journey as a family hasn't been an easy one....
Oct 10, 2021
Kunal's Story - "How Fragile X Affects My Life..."
Who I am My name is Kunal. I am a 29 year old man. I have Fragile X Syndrome. This affects my life in lots of ways. What is Fragile X? ...
Oct 10, 2021
International Fragile X Awareness Day - 10 October 2021
X.X. (October 10th) is #InternationalFragileXAwarenessDay 2021! Find out more:
Oct 10, 2021
Fragile X Awareness Day - Fragile X Fabulous Funday Sunday Quiz
It's Fragile X Awareness Day on 10 October, so join us online for our first ever virtual 'Fragile X Fabulous Family Funday Sunday Quiz'!
Sep 28, 2021
Kim's Marathon Challenge
Kim is running a virtual half marathon to raise funds and awareness for Fragile X
Sep 14, 2021
Fighting for Fragile X: Pete's Boxing Match
Pete's boxing match in aid of The Fragile X Society
Aug 26, 2021
Are you interested in joining the Board of Directors?
Are you enthusiastic, keen to help and have time to give? We'd love to hear from you!
Jul 13, 2021
The end of term and transition to a new school or classroom
Caroline shares some tips for the transition to a new school or classroom in September.
Jul 13, 2021
Five Easy Ways to Support The Fragile X Society
Some simple suggestions as to how you can support The Fragile X Society
Jun 29, 2021
Introducing Dean, our Virgin Money London Marathon 2021 runner
We're delighted to announce that Dean Whitmore will be running the marathon on our behalf. Here, he tells us what inspired him to run for us
Jun 23, 2021
Dennis gets his vaccine
Jo shares how son, Dennis, who has Fragile X, got on with having his Covid-19 vaccination
May 25, 2021
Pedal Power: Theo's Cycling Adventures
Petra shares son Theo's cycling adventures during lockdown covering an amazing 3,278 miles!
Apr 27, 2021
Virgin Money London Marathon 2021
Virgin Money London Marathon 2021 place for The Fragile X Society
Apr 21, 2021
Ready, Steady, GROW!
This spring, we're hoping to spread some sunshine by holding a 'grow your own sunflower' competition!
Apr 21, 2021
Melissa's March: 310,000 steps for Fragile X
Melissa shares son Hugo's diagnosis journey and her challenge of 10,000 steps each day of March 2021 to raise funds & awareness of Fragile X
Apr 19, 2021
Jackie and Matt's 2 million step challenge
Jackie and son, Matt, share their story of their travels on foot to raise funds and awareness of Fragile X
Apr 17, 2021
The Three Peaks - with a twist!
The Three Peaks - with a twist! Chris shares his remarkable fundraising (and fitness!) challenge.
Apr 12, 2021
Nip in the Bud video opportunity
A video request from Olivia Hird, Documentary Filmmaker for Nip in the Bud, which may be of interest to some of our Dads/male carers.
Apr 6, 2021
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