Aug 4, 2022Fragile X and FXTAS: my family's storyEmma has shared with us her family's story of Fragile X and FXTAS (Fragile X-Associated Tremor/Ataxia Syndrome) Emma tells us, "I had...
Jul 6, 2022Dad's FXTAS journeySarah has shared this story about her father's FXTAS (Fragile X-Associated Tremor/Ataxia Syndrome) journey.
May 19, 2022Kunal's holiday to DubaiKunal wanted to share with you what he most enjoyed on his recent holiday to Dubai!
Feb 24, 2022The Neuro-GD Study: with Fragile X Coach DenoJo shares her story of son Dennis' participation in the Neuro-GD Study run by Dr Andy Stanfield and colleagues at the Patrick Wild Centre
Feb 15, 2022The kindness of strangersOne of our members shared this story about her son's employment journey
Jan 20, 2022FraudOne of our members highlights a problem their family has experienced, in the hope it may prevent something similar happening to yours.
Jan 13, 2022Kunal's favourite activitiesKunal wanted to share with you some of the things he's enjoyed doing over the last few months.
Jan 12, 2022Coach Deno loses his Grandma MiniJo shares how her son, Dennis (known as Coach Deno) has coped with losing his beloved Grandma Mini
May 25, 2021Dennis gets his vaccineJo shares how son, Dennis, who has Fragile X, got on with having his Covid-19 vaccination
Apr 27, 2021Pedal Power: Theo's Cycling AdventuresPetra shares son Theo's cycling adventures during lockdown covering an amazing 3,278 miles!