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Kunal's Activities
Kunal wanted to share with you all some of the fun activities he enjoys with his friends at Pholk Care My name is Kunal Panchal and I...
Feb 15, 2023
191 views
Emily to represent Great Britain in Special Olympics 2023
Louise Clarke shares the exciting news that daughter Emily has been selected to represent Great Britain in tennis at the Special Olympics
Jan 6, 2023
377 views
Where are they now? with the Irvines
In this first instalment of our new series, Sally and Jim Irvine share this family update about sons Jamie (40) and Stephen (35)
Nov 29, 2022
269 views
Coping with the death of HM Queen Elizabeth II
Jo has shared this story of how her son, Dennis (known as Coach Deno) has coped with the death of Her Late Majesty Queen Elizabeth II
Nov 3, 2022
279 views
International Fragile X Awareness Day 2022: 10 October
Today is International Fragile X Awareness Day. But what is life really like with Fragile X? Watch our special family stories to find out.
Oct 10, 2022
237 views
Our family trip to the NFXF Conference, San Diego
Katrina sent us this update and pictures from her family's summer trip to the National Fragile X Foundation (NFXF) conference in San Diego.
Aug 17, 2022
105 views
Five simple tips for hot weather
Laura has shared these great tips which helped her child cope with the recent hot weather.
Aug 17, 2022
50 views
Fragile X and FXTAS: my family's story
Emma has shared with us her family's story of Fragile X and FXTAS (Fragile X-Associated Tremor/Ataxia Syndrome) Emma tells us, "I had...
Aug 4, 2022
773 views
Dad's FXTAS journey
Sarah has shared this story about her father's FXTAS (Fragile X-Associated Tremor/Ataxia Syndrome) journey.
Jul 6, 2022
793 views
Kunal's holiday to Dubai
Kunal wanted to share with you what he most enjoyed on his recent holiday to Dubai!
May 19, 2022
91 views
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