Laura has shared these great tips which helped her child cope with the recent hot weather.

Emma has shared with us her family's story of Fragile X and FXTAS (Fragile X-Associated Tremor/Ataxia Syndrome) Emma tells us, "I had...

Jan Wright, our contract worker in Northern Ireland, has shared this update on what's been happening in Northern Ireland Hello from...

Please help us raise awareness for International Fragile X Awareness Day on 10 October by asking councils to light up a landmark in blue!

What are they and how can they be addressed by researchers of medication trials for Fragile X Syndrome?

Hannah shares her story of her running challenge during Fragile X Awareness month, in memory of her father, Bob

Kim is running a virtual half marathon to raise funds and awareness for Fragile X

Jo shares how son, Dennis, who has Fragile X, got on with having his Covid-19 vaccination

Petra shares son Theo's cycling adventures during lockdown covering an amazing 3,278 miles!

All people on the Learning Disability Register to be prioritised for Covid-19 vaccine