Aug 17, 2022Five simple tips for hot weatherLaura has shared these great tips which helped her child cope with the recent hot weather.
Aug 4, 2022Fragile X and FXTAS: my family's storyEmma has shared with us her family's story of Fragile X and FXTAS (Fragile X-Associated Tremor/Ataxia Syndrome) Emma tells us, "I had...
Aug 4, 2022Hello from Northern Ireland!Jan Wright, our contract worker in Northern Ireland, has shared this update on what's been happening in Northern Ireland Hello from...
Jul 13, 2022Light up a landmark for Fragile X Awareness Day on 10 October!Please help us raise awareness for International Fragile X Awareness Day on 10 October by asking councils to light up a landmark in blue!
Mar 24, 2022Barriers to participating in clinical trialsWhat are they and how can they be addressed by researchers of medication trials for Fragile X Syndrome?
Oct 20, 2021Hannah's 80km running challenge for Fragile XHannah shares her story of her running challenge during Fragile X Awareness month, in memory of her father, Bob
Sep 14, 2021Kim's Marathon Challenge Kim is running a virtual half marathon to raise funds and awareness for Fragile X
May 25, 2021Dennis gets his vaccineJo shares how son, Dennis, who has Fragile X, got on with having his Covid-19 vaccination
Apr 27, 2021Pedal Power: Theo's Cycling AdventuresPetra shares son Theo's cycling adventures during lockdown covering an amazing 3,278 miles!
Feb 24, 2021Covid 19 vaccine prioritised for people with learning disabilitiesAll people on the Learning Disability Register to be prioritised for Covid-19 vaccine