top of page
Search
25 Years On: Martin's First Flat
Jim Paterson Martin, our youngest child, was diagnosed in Edinburgh with Fragile X Syndrome when he was nine years old, but it was...
Oct 15, 2021
25 views
25 Years On: I Love My Job!
Hannah Bayly & Jo Barr There’s something very humbling about setting about writing a story that comes from deep within the heart; and...
Oct 15, 2021
39 views
25 Years On: Supporting Siblings
Kathryn Silk 1990 Katherine and Susan in 1990 Ian and Howard in 1990 Our father was seventy-four at the time and looking after two sons,...
Oct 14, 2021
22 views
Chloe's Story
Pippa Wyndham-Pearce shares daughter Chloe's story, and reflects on her growing confidence as she moves from her teens into young...
Oct 14, 2021
59 views
The Leath Family
“My name is Elizabeth Leath. I am a pre-mutation carrier of Fragile X Syndrome, and I have 2 little girls with the full mutation. Fragile...
Oct 13, 2021
455 views
A Serious Case of Empty Nest Syndrome!
Edel Harris shares the story, of son Ross gaining independence, and moving in to his own flat. "My son Ross is 23 and was diagnosed with...
Oct 12, 2021
95 views
The Carroll Family: Journey with a Happy Ending
Zoe Carroll shares her story, from diagnosis to family life now. "We received Charlie's diagnosis on his second birthday. The world...
Oct 11, 2021
42 views
John's Story
In this story we hear from Lorraine Peacock, writing about her brother, John. "Our Fragile X journey as a family hasn't been an easy one....
Oct 10, 2021
39 views
Kunal's Story - "How Fragile X Affects My Life..."
Who I am My name is Kunal. I am a 29 year old man. I have Fragile X Syndrome. This affects my life in lots of ways. What is Fragile X? ...
Oct 10, 2021
37 views
International Fragile X Awareness Day - 10 October 2021
X.X. (October 10th) is #InternationalFragileXAwarenessDay 2021! Find out more:
Oct 10, 2021
211 views
Fragile X Awareness Day - Fragile X Fabulous Funday Sunday Quiz
It's Fragile X Awareness Day on 10 October, so join us online for our first ever virtual 'Fragile X Fabulous Family Funday Sunday Quiz'!
Sep 28, 2021
99 views
Kim's Marathon Challenge
Kim is running a virtual half marathon to raise funds and awareness for Fragile X
Sep 14, 2021
74 views
Fighting for Fragile X: Pete's Boxing Match
Pete's boxing match in aid of The Fragile X Society
Aug 26, 2021
179 views
Are you interested in joining the Board of Directors?
Are you enthusiastic, keen to help and have time to give? We'd love to hear from you!
Jul 13, 2021
190 views
The end of term and transition to a new school or classroom
Caroline shares some tips for the transition to a new school or classroom in September.
Jul 13, 2021
50 views
Five Easy Ways to Support The Fragile X Society
Some simple suggestions as to how you can support The Fragile X Society
Jun 29, 2021
484 views
Introducing Dean, our Virgin Money London Marathon 2021 runner
We're delighted to announce that Dean Whitmore will be running the marathon on our behalf. Here, he tells us what inspired him to run for us
Jun 23, 2021
183 views
Dennis gets his vaccine
Jo shares how son, Dennis, who has Fragile X, got on with having his Covid-19 vaccination
May 25, 2021
663 views
Pedal Power: Theo's Cycling Adventures
Petra shares son Theo's cycling adventures during lockdown covering an amazing 3,278 miles!
Apr 27, 2021
176 views
Virgin Money London Marathon 2021
Virgin Money London Marathon 2021 place for The Fragile X Society
Apr 21, 2021
75 views
bottom of page