New and inclusive terminology to be adopted in scientific and clinical literature, improving respect for neurodiversity

Our Fragile X Society here in the UK is part of a growing network of countries dedicated to supporting the Fragile X Community and I...

What are they and how can they be addressed by researchers of medication trials for Fragile X Syndrome?

Carers and their children with learning disabilities invited to share their experiences of COVID-19 pandemic using fun, inclusive activities

Caroline Pringle, Families and Professionals Advisor (Child Enquiries) shares top tips on using visual aids to support your child.

Jo shares her story of son Dennis' participation in the Neuro-GD Study run by Dr Andy Stanfield and colleagues at the Patrick Wild Centre

New research paper published in The Lancet which demonstrates that whole genome sequencing (WGS) can quickly detect neurological conditions

Measuring electrical activity in the brain may help in development of drug therapies for Fragile X in new study from the Patrick Wild Centre

One of our members shared this story about her son's employment journey

One of our Directors, John Quaye, is running the Boston Marathon on behalf of Fragile X Society on 18 April this year - his 14th marathon!

Join us on online on Thurs 17 Feb 7.30pm for ‘Managing transitions and planning for the future', with Christine Towers of Together Matters

One of our members highlights a problem their family has experienced, in the hope it may prevent something similar happening to yours.

Kunal wanted to share with you some of the things he's enjoyed doing over the last few months.

Caroline Pringle, our Families and Professionals Advisor for Child Enquiries, shares an update on the Welsh education system

Jo shares how her son, Dennis (known as Coach Deno) has coped with losing his beloved Grandma Mini

We're moving offices! Both our office and helpline will be CLOSED Tues 7 - Thurs 9 December. We re-open on Tues 14 December.

Are you interested in acting? Would you like to take part in a BBC drama? Then I’m delighted to share the following news with you....

Why not support The Fragile X Society this Christmas by sending our Christmas Cards? A choice of 3 new designs at £4 per pack of 10.

Jane shares some tips for adults returning to services as Covid restrictions ease

Hannah shares her story of her running challenge during Fragile X Awareness month, in memory of her father, Bob