Challenging behaviours, such as self-injurious behaviour and aggression, are a significant concern for some people with Fragile X...

Ash joined our family aged 5. My children were then 20, 18 and 14 and they regularly rode and helped out with a friend’s horses. When...

“I remember reading about Pre-implantation Genetic Diagnosis about 10 years ago. Long before we were parents. It was only available...

We are delighted to introduce our new Chair: Dr Kirsten Johnson. "I am married to Jonathan and we have three wonderful daughters, two of...

Effective communication forms an important part of a child’s daily life. For example, producing and understanding speech are criticalfor...

We are proud that we spend our funds responsibly and we constantly consider our services in light of our financial position. As you...

"Vishna is a very kind and loving individual, who is always thinking of other people. In the past Vishna has done fundraising for the...

We at the Fragile X Society are as grateful to Lewis Ross as his family and friends are proud of him for taking on a sponsored swimming...

Hi Girls, The first step is to figure out the usual costs of the things that you like the most (searching the internet works well). The...

Hi Girls, How do you feel about this? Are you worried about the websites you visit or who you are talking to? It’s important to know what...

Hi Girls, This is also something that’s confusing for a lot of people. The first thing to sort out is what you want a friend to do in...

Hi Girls and Mums, Girls, part of being a Mum is feeling really worried that your children are not safe, but also, feeling really worried...

Hi Girls, Letting people know that this is hard for you is a great idea, just so they are not surprised that you’re not feeling to great...

Hi Girls, Here’s a quick way to remember priorities: The first priorities are always the things that PROTECT you (your body, your...

Hi Girls, Something I’ve noticed is that sometimes when we humans feel like something is “work”, or even call it “work”, we automatically...

Hi Mums, This is not uncommon, and can be frustrating, confusing, and worrisome, but it’s okay! You’re not alone in this concern, and...

Hi Mums, There is a lot of information circling around in discussions about parenting that warn of the downsides of technology, but...

Hi Girls, That’s definitely going to happen sometimes, seeing that your brain is trying really hard to make sense of a busy, confusing...

Hi Girls, The first thing to remember is that everyone has thoughts like this. It’s kind of a funny thing about being human— we want to...

Jil Frey, MSW, LCSW is an American clinical social worker working with individuals of all ages with a variety of social, emotional, and...