Hi Girls, How do you feel about this? Are you worried about the websites you visit or who you are talking to? It’s important to know what...

Hi Girls, This is also something that’s confusing for a lot of people. The first thing to sort out is what you want a friend to do in...

Hi Girls and Mums, Girls, part of being a Mum is feeling really worried that your children are not safe, but also, feeling really worried...

Hi Girls, Letting people know that this is hard for you is a great idea, just so they are not surprised that you’re not feeling to great...

Hi Girls, Here’s a quick way to remember priorities: The first priorities are always the things that PROTECT you (your body, your...

Hi Girls, Something I’ve noticed is that sometimes when we humans feel like something is “work”, or even call it “work”, we automatically...

Hi Mums, This is not uncommon, and can be frustrating, confusing, and worrisome, but it’s okay! You’re not alone in this concern, and...

Hi Mums, There is a lot of information circling around in discussions about parenting that warn of the downsides of technology, but...

Hi Girls, That’s definitely going to happen sometimes, seeing that your brain is trying really hard to make sense of a busy, confusing...

Hi Girls, The first thing to remember is that everyone has thoughts like this. It’s kind of a funny thing about being human— we want to...

Jil Frey, MSW, LCSW is an American clinical social worker working with individuals of all ages with a variety of social, emotional, and...

We are excited to announce our 2018 FragileXpedition! What is the FragileXpedition? We want to mark Fragile X Awareness Day (10th...

This is an exciting opportunity to make a valuable difference in the lives of individuals and families living with Fragile X Syndrome:...

Cassie has recently contacted us about a book that she has written about her experiences of being a parent to a daughter with Fragile X...

FXTAS stands for Fragile X-associated Tremor/Ataxia syndrome (FXTAS) – a difficult word for a complex disorder. As a relatively “new”...

Thank you so much to everyone who applied to run the 2018 Virgin Money London Marathon for the Fragile X Society. As you may know, we...

"My name is Carmen, a fragile X carrier and mom to 3 gorgeous girls: Sofia who is 10 years old, Laura 7 and Beatriz 4. When Laura was 5...

Written by Campbell Alexander Ryan, now 25, was diagnosed with Fragile X Syndrome in 1997, after 2 long years trailing around doctors and...

Introduction For a long time, it has been known that fragile X syndrome could be passed to future generations from people with smaller...

At our Stirling Conference, held on Saturday 21st May, we were delighted to hear from individuals and family members sharing their...