Recently, Dr Felicity Boardman and colleagues from Warwick Medical School conducted a study to investigate the implications of genetic...

Podcasts are a fantastic way to get informed on the go. We are delighted to be able to signpost you to some fantastic Fragile X-related...

We are looking for an individual who can use their experience in grant writing to further the work of our passionate, small, national...

Welcome Kate, our new Administrative and Communications Coordinator! We are delighted to welcome Kate Williams to our team as...

We have been supporting Dr Nermin Khalil in recruiting for her study, “Cognitive Emotional Dysregulation of FMR1 Premutation Carrier...

Phoebe created this wonderful documentary about her family's Fragile X diagnosis story. Thank you so much Phoebe for sharing this...

Amanda shares why she started her podcast and blog about her experiences of Fragile X, and much more. "I started my podcast for a few...

Rather than sharing simple facts this Fragile X Awareness Day, we wanted to share a snapshot of real, family life with Fragile X...

On Saturday 28th September 2019 I held a race night with a difference to raise money for Fragile X. Instead watching a horse race on a...

Thank you to everyone who has requested packs to support your activities for Fragile X Awareness Day activities this Thursday, 10th...

"To make a real difference to the lives of disabled children, the Government must make them a priority, including by appointing a...

In this talk from our 2019 Conference, Dr Alusi discusses the diagnosis, treatment and management of FXTAS, as well as her clinic at the...

Social stories are used to give individuals clear information about people, events and situations and to introduce a new experience.

We are writing to give an update in relation to some of the recent chances to our staff team. You may have seen that we recently...

Thank you to all of you who joined us for our conference on 7th September at the University of Birmingham Medical School! We are so...

In this Research Update, Dr Kate Woodcock discusses the work of her research group which aims to understand syndrome specific factors...

In this talk from the 2019 Fragile X Conference (7th September, University of Birmingham Medical School), Dr Jane Waite gives an update...

We are creating a new video to show for Fragile X Awareness Day (10th October). We need short clips of brothers and sisters talking...

‘Fixing’ genes using editing has been getting lots of press, for both good and bad reasons. But as a potential alternative to a...

We were delighted to welcome Dr Andy Stanfield (Patrick Wild Centre, University of Edinburgh) to speak at our 2019 Fragile X Conference...