A European Fragile X Network meeting discussed the term FXAND and recent research on conditions affecting Fragile X premutation carriers.

Heather shares her experiences of growing up with brother James, who has Fragile X

In November 2019, Bridie organised a Fashion Show to raise funds, and awareness, for The Fragile X Society.

This article follows on from our first ‘snippets of advice’ information using social stories for early years to adolescence (click here...

The up-coming Rare Film Festival, will shine the light on the experiences of people with rare conditions (affecting fewer than 1 in 2000...

Recently, Dr Felicity Boardman and colleagues from Warwick Medical School conducted a study to investigate the implications of genetic...

Podcasts are a fantastic way to get informed on the go. We are delighted to be able to signpost you to some fantastic Fragile X-related...

We are looking for an individual who can use their experience in grant writing to further the work of our passionate, small, national...

Welcome Kate, our new Administrative and Communications Coordinator! We are delighted to welcome Kate Williams to our team as...

We have been supporting Dr Nermin Khalil in recruiting for her study, “Cognitive Emotional Dysregulation of FMR1 Premutation Carrier...

Phoebe created this wonderful documentary about her family's Fragile X diagnosis story. Thank you so much Phoebe for sharing this...

Amanda shares why she started her podcast and blog about her experiences of Fragile X, and much more. "I started my podcast for a few...

Rather than sharing simple facts this Fragile X Awareness Day, we wanted to share a snapshot of real, family life with Fragile X...

On Saturday 28th September 2019 I held a race night with a difference to raise money for Fragile X. Instead watching a horse race on a...

Thank you to everyone who has requested packs to support your activities for Fragile X Awareness Day activities this Thursday, 10th...

"To make a real difference to the lives of disabled children, the Government must make them a priority, including by appointing a...

In this talk from our 2019 Conference, Dr Alusi discusses the diagnosis, treatment and management of FXTAS, as well as her clinic at the...

Social stories are used to give individuals clear information about people, events and situations and to introduce a new experience.

We are writing to give an update in relation to some of the recent chances to our staff team. You may have seen that we recently...

Thank you to all of you who joined us for our conference on 7th September at the University of Birmingham Medical School! We are so...