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Fragile X Friday: please can you help us this Black Friday?
Thanks to your support as members of the Fragile X Society and some welcome grant successes this year we are delighted to have been able...
Nov 16, 2020


An open letter from Vicky Ford MP
Parliamentary Under-Secretary of State for Children and Families The latest letter (9 November 2020) from SEND Minister Vicky Ford MP in...
Nov 12, 2020


Our Fragile X Society Christmas Cards have arrived!
Our Fragile X Society Christmas Cards are now available to order from our online shop!
Oct 14, 2020


Fragile X Awareness Day 10 October 2020: Virtual Q&A Session
Fragile X Awareness Day 10 October 2020: Virtual Q&A session - video coming soon!
Oct 12, 2020


Face Coverings in Schools
Links to guidance throughout the UK on face coverings in schools
Sep 3, 2020


A silver lining: Christian's lockdown
Isabella shares her son Christian's lockdown activities.
Aug 24, 2020


Re-opening of adult day services and respite in Scotland
Re-opening of adult day services and respite in Scotland
Aug 6, 2020


Photographs: can you help?
Please can you help us by sending in photographs we may use?
Jul 29, 2020


An open letter from Vicky Ford MP and Helen Whately MP
Open letter of 21 July 2020 from Vicky Ford MP and Helen Whately MP
Jul 23, 2020


Goodbye(-ish)! A note from Becky our out-going CEO.
Goodbye(ish)! A note from Becky, our outgoing CEO
Jul 15, 2020


Social Interactions in Children with Fragile X Syndrome and Other Neurodevelopmental Conditions
Social Interactions in Children with FXS and Other Neurodevelopmental Conditions: a research update
Jul 14, 2020


Attention, Learning and Memory in young people with Fragile X syndrome: Does social context matter?
Attention, Learning and Memory in young people with fragile X syndrome: Does social context matter?
Jul 2, 2020


Wearing Masks
Mask wearing in public is being more widely encouraged. Whilst some people may like wearing a mask, others may find it more tricky.
Jun 23, 2020


Would you like to appear on TV?
Would you like to appear on TV? If so, this casting call may be of interest!
Jun 18, 2020


Coach Deno's Lockdown 30th Birthday
Jo shares son Dennis' (Coach Deno's) 30th birthday celebrations in lockdown.
Jun 18, 2020


Supermarket Shopping: please sign our letter!
Supermarket shopping for individuals with learning disabilities and their families/carers: sign our letter!
Jun 2, 2020


Anne Donohoe: my journey as a therapist, educator and mother
Anne's adult son, Andrew, has Fragile X Syndrome. Here, she tells us about their life in the Far East, and shares her blog and resources...
May 21, 2020


Going Back to School
Going back to school is something which is likely to be on many families' minds at the moment. Here are links to some helpful resources.
May 20, 2020


Coach Deno and Corona Lockdown
Jo shares her experiences of lockdown with son, Dennis.
May 14, 2020


Education, Health and Care Plans
Entitlement for children and young people with Special Educational Needs during Covid 19
May 7, 2020
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