Videos of the talks from our Conference 2022 at Birmingham are available to view on our YouTube channel. Click below to watch.

Anti-Bullying Week is coordinated in England & Wales by the Anti-Bullying Alliance. It takes place 14 -18 Nov 2022 & its theme is Reach Out.

Our Christmas Cards have arrived! Available from our online shop - please order early!

Today is International Fragile X Awareness Day. But what is life really like with Fragile X? Watch our special family stories to find out.

Caroline Pringle, Families and Professionals Advisor (Child Enquiries), shares some strategies for coping with the festive season.

Frank and John undertook a gruelling challenge at the weekend in the form of the 15km Tough Mudder North West, in aid of Fragile X Society.

For International Fragile X Day on 10 Oct, FraXI is creating a new video. Please send in a video clip about what Fragile X means for you.

Dasha Gold has secured a place in this year's London Marathon, and has chosen to raise funds for the Fragile X Society.

The Down Syndrome Act: a step forward maybe...But what about Fragile X? The recent Down Syndrome Act has led to an outpouring of strong...

Caroline Pringle, Families and Professionals Advisor (Child Enquiries) shares some information about this year's Anti-Bullying Week.

Jessica Bolton has secured a place in this year's London Marathon, and has chosen to raise funds for the Fragile X Society.

Katrina sent us this update and pictures from her family's summer trip to the National Fragile X Foundation (NFXF) conference in San Diego.

Laura has shared these great tips which helped her child cope with the recent hot weather.

On 9 October this year, Annie Whiteside will be running the Lisbon Marathon to raise funds and awareness for Fragile X Society.

Emma has shared with us her family's story of Fragile X and FXTAS (Fragile X-Associated Tremor/Ataxia Syndrome) Emma tells us, "I had...

Jan Wright, our contract worker in Northern Ireland, has shared this update on what's been happening in Northern Ireland Hello from...

Please help us raise awareness for International Fragile X Awareness Day on 10 October by asking councils to light up a landmark in blue!

Information for our families in Scotland from our Families and Professionals Advisors

Sarah has shared this story about her father's FXTAS (Fragile X-Associated Tremor/Ataxia Syndrome) journey.

Caroline Pringle, Families and Professionals Advisor for Child Enquiries, shares some strategies for eating and mealtimes with your child.