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Feb 29
A holistic approach to Fragile X Syndrome integrated guidance for person-centred care.
We are delighted to share with you a published article which incorporates the views of Fragile X Society members that took part in a...
173 views
Feb 28
University of Rochester FXS Research Survey
Please take 20 minutes to share your opinions and feedback! The Fragile X Society are delighted to be supporting a significant piece of...
155 views
Feb 8
Fragile X Conference 16th March 2024
If you haven’t done so already, please do register you attendance as we anticipate tickets will be gone soon…-...
105 views
Feb 1
Safer Internet Day
This year Safer Internet Day will take place on Tuesday 6th February. The day aims to focus on the online safety and wellbeing of...
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Jan 4
Fragile X International Conference 17-19th November 2023 - by Anne Eccleshall
In November, I went to Gembloux, Belgium to represent the Fragile X Society UK at Fragile X International’s second annual conference....
96 views
Dec 19, 2023
Fragile X Specialised Counselling Service
Dear Fragile X Community, As we approach the festive season, I find myself reflecting on the strength and resilience that binds our...
103 views
Dec 7, 2023
Isabel's Story
Having done the Great South Run once before, I was keen to do it again and this time raise some money for charity. Which charity was...
203 views
Dec 5, 2023
Tips for the festive season
With Christmas approaching, we can see many changes around us. From decorations and lights appearing, to Christmas foods and gifts in the...
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Nov 1, 2023
A Rare Find is released this Sunday, 5th November 2023
The UK currently screens newborns for just 9 rare but serious conditions whereas the USA tests for up to 59. Local filmmaker John Lee...
112 views
Oct 26, 2023
Anti-Bullying Week Monday 13th – Friday 17th November 2023
The anti-bullying alliance have released a booklet for anti-bullying week. Covering how you can take part and timeline for the week.
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Oct 19, 2023
Danielle & Isla's Fundraiser for Fragile X Society
Danielle and Isla are running the Garioch 5k. This is their story on why they have chosen the Fragile X Society to support. The Society...
63 views
Oct 11, 2023
Anti-Bullying Week: 13 – 17th November 2023
Alison Field, Families and Professionals Advisor (Child Enquiries) shares some information about this year's Anti-Bullying Week: I do...
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Oct 10, 2023
Fragile X Awareness Day
Freya Woods - Interview Please watch this inspiring interview between Pete Richardson and Freya Woods for Fragile X Awareness Day. Thank...
348 views
Aug 10, 2023
Top tips for returning to school… by Alison Field
1. If the school your child goes to has provided a transition book, then try to look at it regularly in the run up to returning...
65 views
Aug 9, 2023
Fragile X Premutation Carrier
“Are you are a Fragile X premutation carrier and if so, would you like to take part in some ground breaking research? This study is being...
136 views
Jul 27, 2023
Freya's Story
Freya has written a lovely story in her own words to help raise awareness about people with learning disabilities. I’m not less than you....
552 views
Jul 27, 2023
Kunal's Days Out
Kunal has kindly shared some of the days out he has been on recently and we have enjoyed reading and seeing what a great time he had. My...
123 views
Jul 26, 2023
Fragile X Premutation Study Girls & Woman- Take Part in Research
Thank you to all who have participated in University of Surrey’s research on social and emotional wellbeing in women with the fragile X...
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