Patrick Wild Centre are looking for volunteers with full mutation fragile X syndrome (aged 3-45) to join their study that aims to better...

As we start 2025 lets celebrate all of our achievements of 2024.

Eddie and Ciara successfully finished the Winter Milton Keynes half marathon. Despite the terrible weather, Eddie completed the race with...

A couple of weeks ago Pete Richardson, Managing Director, was privileged to be able to deliver a presentation on Fragile X to the Leeds...

During the Charity Stewards’ Lodge meeting at Chingford Masonic Hall on November 6th, Pete was thrilled to present on Fragile X to an...

With Christmas approaching, we can see many changes around us. From decorations and lights appearing, to Christmas foods and gifts in the...

What are the challenges of developing independence and supporting the quality of life of adult males affected by Fragile X Syndrome?   I...

Please donate generously to us on Black Friday!!! https://www.fragilex.org.uk/make-a-donation Let’s be honest no one needs reindeer...

We received a lovely story from Ciara and Eddie. They are both taking part in the Milton Keynes Winter Half Marathon to raise awareness...

We would like to say a massive thank you to Stephen, Keith and Milo.   Stephen who has Fragile X syndrome, decided he would love to raise...

Alison Field, Families and Professionals Advisor (Child Enquiries) shares some information about this year's Anti-Bullying Week: I hope...

Thank you to Adam, who has kindly chosen to fundraise for the Fragile X Society. Adam chose to support the Society due to his nephew...

For Fragile X Awareness day on the 10th of October 2024. Our aim was to create as much publicity and raise as much awareness of Fragile X...

The University of Surrey is currently conducting a research study that aims to explore the experiences of parents and carers who have...

Fragile X Awareness Day - 10/10/24 This year, the main feature for our Fragile X Awareness Day, is an interview between Pete Richardson...

To help raise awareness, we are asking people if they could kindly either update their Facebook profile or cover picture with the Fragile...

Last month we received a lovely story from one of our members Michael, who was taking part in The Great North run, to raise awareness and...

This research projects aims to understand what factors predict the type and pattern of sleep problems that children with...

We wanted to share with you a new policy report  from the Council for Disabled Children and Disabled Children's Partnership. The report...

Today, the Children’s Charities Coalition is launching our annual report on children's services spending, in partnership with Pro-Bono...