Quick Guides - Adult Life with FX
- Fragile X Society
- Aug 19
- 1 min read
from Jane Oliver, Senior Families and Professionals Advisor (Adult Enquiries).
🆕 New Quick Guides to Adult Life with Fragile X Syndrome
We’re excited to share three new Quick Guides designed to support adults with Fragile X Syndrome
as an introduction for services. These guides are ideal for support workers and other professionals
and provide simple, accessible advice. Let’s help create a world where adults with fragile X syndrome are included and supported to thrive. These guides are a place to start....
🔹 👩 Women and Fragile X Syndrome – A Quick Guide
Women and girls with Fragile X often face subtle but significant challenges—especially in areas like social anxiety, executive functioning, numeracy, and masking.
This guide includes:
• Communication tips for reducing anxiety
• How to support in daily life
• Supporting emotional wellbeing with compassion
🔹 🤝 Supporting an Adult with Fragile X – A Quick Guide
Every adult with Fragile X is different, but many face common issues in communication, change, and sensory processing.
This guide includes:
• Core adult Fragile X profile (behaviours, strengths, and needs)
• Best practice support tips.
• Communicating clearly and calmly—what works
There is a separate quick guide for agency workers.
🔹 💬 Communication and Fragile X – A Quick Guide
Social anxiety, sensory overload and processing delays can all make communication difficult—but there are ways to help.
This guide includes:
• Using visuals, objects of reference and Talking Mats
• Creating low-pressure environments for expression
• Supporting understanding through predictability
For copies contact the Fragile X Society
🌐 Visit: www.fragilex.org.uk
📧 Email: info@fragilex.org.uk
📞 Call: 01371 875100