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Quick Guides - Adult Life with FX

  • Writer: Fragile X Society
    Fragile X Society
  • Aug 19
  • 1 min read

from Jane Oliver, Senior Families and Professionals Advisor (Adult Enquiries).


🆕 New Quick Guides to Adult Life with Fragile X Syndrome


We’re excited to share three new Quick Guides designed to support adults with Fragile X Syndrome

as an introduction for services. These guides are ideal for support workers and other professionals

and provide simple, accessible advice. Let’s help create a world where adults with fragile X syndrome are included and supported to thrive. These guides are a place to start....


🔹 👩 Women and Fragile X Syndrome – A Quick Guide


Women and girls with Fragile X often face subtle but significant challenges—especially in areas like social anxiety, executive functioning, numeracy, and masking.


This guide includes:

• Communication tips for reducing anxiety

• How to support in daily life

• Supporting emotional wellbeing with compassion


🔹 🤝 Supporting an Adult with Fragile X – A Quick Guide


Every adult with Fragile X is different, but many face common issues in communication, change, and sensory processing.


This guide includes:

• Core adult Fragile X profile (behaviours, strengths, and needs)

• Best practice support tips.

• Communicating clearly and calmly—what works


There is a separate quick guide for agency workers.


🔹 💬 Communication and Fragile X – A Quick Guide


Social anxiety, sensory overload and processing delays can all make communication difficult—but there are ways to help.


This guide includes:

• Using visuals, objects of reference and Talking Mats

• Creating low-pressure environments for expression

• Supporting understanding through predictability


For copies contact the Fragile X Society

📞 Call: 01371 875100



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