by Jane Oliver - Senior Families & Professional Advisor Caring for someone with Fragile X syndrome can bring additional pressures....

Harmony Biosciences has shared the results of their Phase 3 trial RECONNECT Study. Unfortunately, the study did not meet its primary...

Sensory Frontloading: What is it and how can it help? Transitions can be tough for many children and young people with Fragile X...

We are delighted to share that James and Chris will be taking on the Yorkshire Marathon  this October in support of the Fragile X...

Throughout September 2025, Lewis is taking on an incredible personal challenge to raise awareness and funds for the Fragile X Society UK....

from Jane Oliver, Senior Families and Professionals Advisor (Adult Enquiries). 🆕 New Quick Guides to Adult Life with Fragile X Syndrome...

Supporting Learning with Numbers: Highlights from Our Recent MathMIND Webinar We were delighted to welcome families and professionals to...

✏️ Back to School: Helping You and Your Child Feel Prepared As we begin the summer holidays, many families will already be thinking ahead...

My name is Katie Quinn, and I have just started a PhD looking into Fragile X and the impact of being a caregiver for this condition....

A health research company, Global Market Access Solutions, is conducting parent interviews to learn more about the experience of...

Moving from ESA to Universal Credit? Here’s what you need to know. If you or someone in your family is on income-related Employment and...

For many families, the summer break is a welcome chance to rest and recharge, but for children and young people with Fragile X Syndrome...

What is Fight for Ordinary? In mid-July, the Disabled Children’s Partnership will be launching the Fight for Ordinary campaign. Fight For...

We know that sleep can be a major challenge for many families affected by Fragile X Syndrome. Whether it’s trouble falling asleep, waking...

As a small charity making a big impact, the Fragile X Society relies on the generosity and creativity of our community to keep vital...

We sincerely thank Lorraine for her remarkable efforts in raising awareness and funds for the Fragile X Society by taking part in the...

Thank you for sharing this wonderful picture of Amelia, who participated in an Easter Egg competition themed 'fun run for Fragile...

We are delighted to let you know about a forthcoming International Workshop on Fragile X Syndrome on  June 20th 2025  in Padua, organised...

In March this year, Thomas, Andrews son and Catriona's nephew was diagnosed with Fragile X Syndrome. They will participate in the...

In March 2025, we hosted our Edinburgh conference for the second consecutive year. The event was highly successful. We extend our...