✏️ Back to School: Helping You and Your Child Feel Prepared As we begin the summer holidays, many families will already be thinking ahead...

My name is Katie Quinn, and I have just started a PhD looking into Fragile X and the impact of being a caregiver for this condition....

A health research company, Global Market Access Solutions, is conducting parent interviews to learn more about the experience of...

Moving from ESA to Universal Credit? Here’s what you need to know. If you or someone in your family is on income-related Employment and...

For many families, the summer break is a welcome chance to rest and recharge, but for children and young people with Fragile X Syndrome...

What is Fight for Ordinary? In mid-July, the Disabled Children’s Partnership will be launching the Fight for Ordinary campaign. Fight For...

We know that sleep can be a major challenge for many families affected by Fragile X Syndrome. Whether it’s trouble falling asleep, waking...

As a small charity making a big impact, the Fragile X Society relies on the generosity and creativity of our community to keep vital...

We sincerely thank Lorraine for her remarkable efforts in raising awareness and funds for the Fragile X Society by taking part in the...

Thank you for sharing this wonderful picture of Amelia, who participated in an Easter Egg competition themed 'fun run for Fragile...

We are delighted to let you know about a forthcoming International Workshop on Fragile X Syndrome on  June 20th 2025  in Padua, organised...

In March this year, Thomas, Andrews son and Catriona's nephew was diagnosed with Fragile X Syndrome. They will participate in the...

In March 2025, we hosted our Edinburgh conference for the second consecutive year. The event was highly successful. We extend our...

Thank you all for attending the conference and for playing such an important role in making it a truly meaningful and inspiring event....

Thank you to Sabrina, one of our FX members, who sent in this lovely picture of her children over the Easter Holidays having some "Easter...

Thank you to Sarah for sending in these lovely photos of her two sons, Klay and Kruz, who are both living with Fragile X syndrome. Klay,...

We extend our heartfelt thanks to Katrina, her family, and friends for their generous donation of £470 collected at Vicki's funeral. Our...

Alison Field, our Families & Professional Advisor, has authored this blog containing sensory information and references that she believes...

Increasing awareness and driving change for the 300 million individuals globally affected by a rare disease, along with their families...

Sabrina is a parent of a child with Fragile X and a medical professional. She appreciates the complexities of understanding the...