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We need your help for Jeans for Genes Day!
Jeans for Genes Day: can you help? Get involved by making a video clip!
May 7, 2020
Darcy's 26 Hour 2.6 Tent Challenge
Darcy stayed in a tent in her garden for 26 hours, for her 2.6 Challenge
May 6, 2020
Our Fantastic 2.6 Challenge Fundraisers!
This weekend saw the launch of the 2.6 Challenge, a campaign to save the UK's charities. Here are some challenges by our supporters.
Apr 30, 2020
Connor's 2.6 Challenge Run and Ride
Connor Evans, age 12, decided to take part in the 2.6 challenge on Sunday 26th April 2020, to try and raise money for The Fragile X Society.
Apr 29, 2020
Welcoming Pete Richardson as Managing Director
Pete Richardson joins The Fragile X Society as Managing Director from 5 May 2020
Apr 28, 2020
Life During Lockdown
Diana shares her experiences of life during lockdown with her son Raphael, who has Fragile X.
Apr 28, 2020
What will your 2.6 Challenge be? Help save UK charities... including the Fragile X Society!
Take on the 2.6 challenge and raise funds to save our charity!
Apr 16, 2020
The Hotfoot Dance Club
Julie shares the story of her keep-active dance videos featuring her son, Danny, who has Fragile X.
Apr 14, 2020
Birthday Celebrations in Lockdown
Birthday celebrations in Lockdown
Apr 9, 2020
Supporting Children with Fragile X Syndrome during Lockdown: Some Tips
Supporting children with Fragile X Syndrome during lockdown: some tips
Apr 8, 2020
Update on benefits: coronavirus
Jane Oliver, Senior Families and Professionals Advisor (Adult Enquiries), highlights some recent changes to benefits
Apr 2, 2020
We're all at home - help!
Some tips for staying at home from Jane Oliver, Senior Families and Professionals Advisor at The Fragile X Society
Apr 1, 2020
Open letter from Minister Vicky Ford to the SEND Sector
Parliamentary Under-Secretary of State for Children and Families, Vicky Ford MP, has issued an open letter for children and young people wit
Mar 25, 2020
Ava and Ella's hair donation
Tracy shares her story of daughters Ava and Ella's hair donation for the Little Princess Trust - and fundraising for The Fragile X Society
Mar 24, 2020
Cancelled: Family Weekend at Thomley, May 2020
Our planned Family Weekend at Thomley, May 2020, has been cancelled due to current situation with Coronavirus. Further details to follow.
Mar 12, 2020
Fragile X Premutation Associated Conditions (FXPAC) Statement
A European Fragile X Network meeting discussed the term FXAND and recent research on conditions affecting Fragile X premutation carriers.
Jan 30, 2020
Growing up with Fragile X: one family's story
Heather shares her experiences of growing up with brother James, who has Fragile X
Jan 28, 2020
Bridie's Fabulous Fashion Show!
In November 2019, Bridie organised a Fashion Show to raise funds, and awareness, for The Fragile X Society.
Jan 28, 2020
Using Social Stories from Adolescence into Adulthood (Part 2)
This article follows on from our first ‘snippets of advice’ information using social stories for early years to adolescence (click here...
Jan 23, 2020
Families in Birmingham: We need you to help with our film!
The up-coming Rare Film Festival, will shine the light on the experiences of people with rare conditions (affecting fewer than 1 in 2000...
Nov 28, 2019
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