In this Research Update, Dr Kate Woodcock discusses the work of her research group which aims to understand syndrome specific factors...

In this talk from the 2019 Fragile X Conference (7th September, University of Birmingham Medical School), Dr Jane Waite gives an update...

We are creating a new video to show for Fragile X Awareness Day (10th October). We need short clips of brothers and sisters talking...

‘Fixing’ genes using editing has been getting lots of press, for both good and bad reasons. But as a potential alternative to a...

We were delighted to welcome Dr Andy Stanfield (Patrick Wild Centre, University of Edinburgh) to speak at our 2019 Fragile X Conference...

Students with Fragile X are prone to hyperarousal: here are some tips to minimise hyperarousal and anxiety & maximise focus and cooperation.

It is really important to us to be able to take into account the views of our community when planning the future of the Society. So, your...

"Back in the harsh winter of early 2018 when the “Mini Beast from the East” was preparing to send blizzards our way, the Fragile X...

Do you have a background in finance, accounting or bookkeeping? We are looking for an amazing volunteer to join our Board of Directors as...

Fantastic and rewarding opportunity to run a small but national charity, and make an amazing difference to people with Fragile X

A supporter tells us what it was like walking across an East Asian lake under the watchful eyes of wolves! "On 3rd March this year I flew...

We have been absolutely blown away by our incredible supporters on Facebook who, this calendar year alone, have raised over £8,000! This...

This is the story of how my 47 year old brother-in-law Alec, who has Fragile X syndrome, completed a gruelling 400 mile cycle ride from...

Functional MRI in carriers of the FMR1 premutation: Study results from University of Edinburgh and the Patrick Wild Centre In 2013 to...

A wedding is a fantastic time to celebrate and recognise the people and the things most special to you, and the opportunity to have a day...

Ian tells us why he ended up running a half marathon despite having done no training! “Anna, my wife, is a family member of the Fragile X...

"People with learning disabilities have been kept out of community life in the past. Not any more. We are going to ordinary schools with...

In a recent article in the Archives of Disease in Childhood (ADC), Paula shared her experiences of growing up with Fragile X Syndrome....

My sister Raana recently made a film about her everyday life that was shown to an audience of 130 people at a conference in London. This...