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Cancelled: Family Weekend at Thomley, May 2020

In light of the current situation with Coronavirus (COVID-19), we have made the difficult decision to cancel our planned Family Weekend at Thomley on 16-17th May. We recognise that this decision may cause disappointment but the health and the safety of our community is our priority.

We will be monitoring the situation closely and will be exploring arranging some more informal regional meet-ups over the coming months, should the situation permit. In addition, we will be exploring running some livestreamed talks on our social media, in place of the planned talks at the Family Weekend. We will make announcements about these updates via our newsletter, website and social media. In addition, we will be planning a conference and AGM for September 2020, and will announce details of this in due course. If you were due to pick up your Friends of Fragile X pin badge and car sticker at the Family Weekend, these will be posted to you instead.

In the meantime, please do remember that you can reach our Families and Professionals Advisors on our Helpline (01371875100 or

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