Apr 28, 2020Life During LockdownDiana shares her experiences of life during lockdown with her son Raphael, who has Fragile X.
Apr 14, 2020The Hotfoot Dance ClubJulie shares the story of her keep-active dance videos featuring her son, Danny, who has Fragile X.
Jan 28, 2020Growing up with Fragile X: one family's storyHeather shares her experiences of growing up with brother James, who has Fragile X
Nov 27, 2019Fragile X PodcastsPodcasts are a fantastic way to get informed on the go. We are delighted to be able to signpost you to some fantastic Fragile X-related...
Oct 10, 2019Fragile Not Broken: A DocumentaryPhoebe created this wonderful documentary about her family's Fragile X diagnosis story. Thank you so much Phoebe for sharing this...
Jun 4, 2019Paula's Message for Healthcare ProfessionalsIn a recent article in the Archives of Disease in Childhood (ADC), Paula shared her experiences of growing up with Fragile X Syndrome....
May 15, 2019My sister’s “ordinary life” By Saba Salman My sister Raana recently made a film about her everyday life that was shown to an audience of 130 people at a conference in London. This...
May 14, 2019#fragilextraveller: My Amazing Holiday to AustraliaHello to all you lovely people, I’m Matt #fragilextraveller and with the help of my Mum & Nan I have been on an amazing holiday to...
May 14, 2019"Bye, Jean!"What I am going to write - what has happened – has made me the person I am today. In this piece jean reflects on her children growing up...