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Melissa's March: 310,000 steps for Fragile X
Melissa shares son Hugo's diagnosis journey and her challenge of 10,000 steps each day of March 2021 to raise funds & awareness of Fragile X
Apr 19, 2021
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Nip in the Bud video opportunity
A video request from Olivia Hird, Documentary Filmmaker for Nip in the Bud, which may be of interest to some of our Dads/male carers.
Apr 6, 2021
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A sibling's viewpoint: Anne and Nick's story
Anne shares her story of growing up with her brother Nick, who has Fragile X Syndrome
Feb 23, 2021
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'The best book I have read on Fragile X Syndrome'
A review of 'Mental Essence' by Emilie Weight from Jonathan Herring, Honorary Advisor to The Fragile X Society 'This book is the best...
Feb 2, 2021
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Kunal Keeping Busy
Kunal’s story which was written before the current lockdown Kunal would like to share with you all what has been happening in his life...
Jan 28, 2021
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Lola's Lockdown
Claire shared these lovely photos of her daughter Lola "Here we are again in lockdown number 3! We have found it a bit more of a...
Jan 26, 2021
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A silver lining: Christian's lockdown
Isabella shares her son Christian's lockdown activities.
Aug 24, 2020
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Coach Deno's Lockdown 30th Birthday
Jo shares son Dennis' (Coach Deno's) 30th birthday celebrations in lockdown.
Jun 18, 2020
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Anne Donohoe: my journey as a therapist, educator and mother
Anne's adult son, Andrew, has Fragile X Syndrome. Here, she tells us about their life in the Far East, and shares her blog and resources...
May 21, 2020
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Coach Deno and Corona Lockdown
Jo shares her experiences of lockdown with son, Dennis.
May 14, 2020
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