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    • Home

    • About Fragile X

      • Fragile X and Autism
      • Diagnosis
      • Genetic Testing
      • Carriers
      • Personal Stories
      • Resources
    • Help & Support

      • Membership
      • Snippets of Advice Blog
      • Case Studies
      • Events
      • Fragile X Society Conference 2022
      • Feedback
    • Get Involved

      • Make a Donation
      • Leaving a Legacy
      • Friends of Fragile X
      • 100+ Club
      • Corporate Support
      • Fundraising
      • Become a Media Volunteer
    • About Us

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      • All Posts
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      Frozen: Iain's icy adventure
      • Jul 23, 2019

      Frozen: Iain's icy adventure

      A supporter tells us what it was like walking across an East Asian lake under the watchful eyes of wolves! "On 3rd March this year I flew...
      79 views
      Fantastic Facebook Fundraisers!
      • Jul 23, 2019

      Fantastic Facebook Fundraisers!

      We have been absolutely blown away by our incredible supporters on Facebook who, this calendar year alone, have raised over £8,000! This...
      43 views
      Coast to coast, east to west
      • Jul 19, 2019

      Coast to coast, east to west

      This is the story of how my 47 year old brother-in-law Alec, who has Fragile X syndrome, completed a gruelling 400 mile cycle ride from...
      331 views
      Wedding Gifts with an Impact
      • Jul 16, 2019

      Wedding Gifts with an Impact

      A wedding is a fantastic time to celebrate and recognise the people and the things most special to you, and the opportunity to have a day...
      199 views
      Ian saves the day (Don’t try this at home)
      • Jun 28, 2019

      Ian saves the day (Don’t try this at home)

      Ian tells us why he ended up running a half marathon despite having done no training! “Anna, my wife, is a family member of the Fragile X...
      41 views
      A Race to Raise Awareness
      • Apr 18, 2019

      A Race to Raise Awareness

      My name is Paula and I am 27 years old. I am a keen runner and I run with my local running club. I have been running for 2 years. My...
      149 views
      Giving something back: Carmen's Story
      • Apr 1, 2017

      Giving something back: Carmen's Story

      "My name is Carmen, a fragile X carrier and mom to 3 gorgeous girls: Sofia who is 10 years old, Laura 7 and Beatriz 4. When Laura was 5...
      29 views
      Ryan's Rowdy Ramblers Tackle Ben Nevis!
      • Jul 1, 2016

      Ryan's Rowdy Ramblers Tackle Ben Nevis!

      Written by Campbell Alexander Ryan, now 25, was diagnosed with Fragile X Syndrome in 1997, after 2 long years trailing around doctors and...
      12 views
      12
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