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We want to hear your views!
It is really important to us to be able to take into account the views of our community when planning the future of the Society. So, your...
Sep 11, 2019
"It’s goodbye from me". Noel looks back fondly at his time as our Administrative Coordinator
"Back in the harsh winter of early 2018 when the “Mini Beast from the East” was preparing to send blizzards our way, the Fragile X...
Aug 30, 2019
Seeking an Honorary Treasurer
Do you have a background in finance, accounting or bookkeeping? We are looking for an amazing volunteer to join our Board of Directors as...
Aug 1, 2019
Opportunity to join the team as Managing Director
Fantastic and rewarding opportunity to run a small but national charity, and make an amazing difference to people with Fragile X
Jul 23, 2019
Learning Disability Pride – we are proud of who we are!
"People with learning disabilities have been kept out of community life in the past. Not any more. We are going to ordinary schools with...
Jun 18, 2019
UK Fragile X-Associated Tremor/Ataxia Syndrome Clinic: An Interview with Dr Alusi
In this piece we interview Dr Sundus Alusi who is developing a service for people with, or concerned about, FXTAS, as part of her...
May 14, 2019
Charities Celebrated at Royal Reception
The National Council for Voluntary Organisations (NCVO) has been championing volunteering and the voluntary sector for 100 years. To mark...
Apr 11, 2019
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