"To make a real difference to the lives of disabled children, the Government must make them a priority, including by appointing a...

In this talk from our 2019 Conference, Dr Alusi discusses the diagnosis, treatment and management of FXTAS, as well as her clinic at the...

We are writing to give an update in relation to some of the recent chances to our staff team. You may have seen that we recently...

Thank you to all of you who joined us for our conference on 7th September at the University of Birmingham Medical School! We are so...

We are creating a new video to show for Fragile X Awareness Day (10th October). We need short clips of brothers and sisters talking...

It is really important to us to be able to take into account the views of our community when planning the future of the Society. So, your...

"Back in the harsh winter of early 2018 when the “Mini Beast from the East” was preparing to send blizzards our way, the Fragile X...

Do you have a background in finance, accounting or bookkeeping? We are looking for an amazing volunteer to join our Board of Directors as...

Fantastic and rewarding opportunity to run a small but national charity, and make an amazing difference to people with Fragile X