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Opportunity to join the team as Managing Director

Job Title:                Managing Director, The Fragile X Society

Responsible to:      Board of Directors, Fragile X Society

Salary:                    £32,000

Tenure: Full time

Hours:                    37 hours per week

Location: Rood End House, 6 Stortford Road, Great Dunmow, Essex CM6 1DA

Closing Date:         Wednesday, 21 August, 5pm

Schedule of Appointment:

Interviews, 29 August, between 10am and 5pm, at our offices as above.

Successful applicant to begin work as soon as feasible thereafter, with an initial probation period of 6 months before the role becomes permanent.

Please send applications in the form of covering letter, CV and names/contact details of three references to: Dr Kirsten Johnson, Chair, Board of Directors, Fragile X Society, at the above address or by email to

Full Job Description for the role of Managing Director is here.


The Fragile X Society was formed in 1990 by families whose children had just been diagnosed with Fragile X Syndrome. The charity has now grown to consist of a team of dedicated employees and volunteers, supporting thousands of individuals and families.

Our vision is a world where people living with Fragile X are:

  • Valued, included and have their individual needs met - and that Fragile X is recognised and understood by professionals and the public.

  • Not alone - that they have access to an active community of people who understand.

  • Empowered - through evidence-based knowledge about Fragile X.

Due to service's and society's attitudes, a lack of awareness, and features caused by the condition, people living with Fragile X and their families face wide-ranging challenges. Families regularly tell us that generic supports and services do not understand their needs adequately, or that they felt lost in broader organisations relating to autism or learning disability. We are working to change this. 

Our Aims are:

  • To provide information and practical guidance to support and empower individuals and families living with Fragile X Syndrome and Fragile X-associated conditions

  • To educate and inform the public and professionals about Fragile X in order to raise awareness and understanding of the syndrome and improve support for all individuals affected by Fragile X

  • To encourage research into all aspects of Fragile X through the participation of our family members in Fragile X studies and to publicise the results.

  • To raise funds to carry out our work

The new Managing Director will work with the Board, staff and volunteers to achieve these aims. A key aspect of the role will be Fundraising, as we rely on grants and donations for our operational budget.


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