The Down Syndrome Act: a step forward maybe...But what about Fragile X? The recent Down Syndrome Act has led to an outpouring of strong...

Jessica Bolton has secured a place in this year's London Marathon, and has chosen to raise funds for the Fragile X Society.

Jan Wright, our contract worker in Northern Ireland, has shared this update on what's been happening in Northern Ireland Hello from...

Please help us raise awareness for International Fragile X Awareness Day on 10 October by asking councils to light up a landmark in blue!

A few highlights from our Family Weekend at the fantastic Thomley in Worminghall. Thanks to everyone who joined us!

Mencap would like to invite people with a learning disability to take part in their 2022 Big Learning Disability Survey! Have your say:

Launch of Fragile X International (FraXI), a new organisation for families and healthcare professionals who live or work with Fragile X

Our Fragile X Society here in the UK is part of a growing network of countries dedicated to supporting the Fragile X Community and I...

Join us on online on Thurs 17 Feb 7.30pm for ‘Managing transitions and planning for the future', with Christine Towers of Together Matters

We're moving offices! Both our office and helpline will be CLOSED Tues 7 - Thurs 9 December. We re-open on Tues 14 December.