We are proud that we spend our funds responsibly and we constantly consider our services in light of our financial position. As you...

We are excited to announce our 2018 FragileXpedition! What is the FragileXpedition? We want to mark Fragile X Awareness Day (10th...

This is an exciting opportunity to make a valuable difference in the lives of individuals and families living with Fragile X Syndrome:...

Cassie has recently contacted us about a book that she has written about her experiences of being a parent to a daughter with Fragile X...

FXTAS stands for Fragile X-associated Tremor/Ataxia syndrome (FXTAS) – a difficult word for a complex disorder. As a relatively “new”...

Thank you so much to everyone who applied to run the 2018 Virgin Money London Marathon for the Fragile X Society. As you may know, we...

At our Stirling Conference, held on Saturday 21st May, we were delighted to hear from individuals and family members sharing their...

On Saturday 9th April, Craig McDonald (our Chairman), wife Gillian, and twin sons Stuart and Matthew embarked on a fitness challenge, in...

Reem Waines (one of our lovely board members) has for the second time taken on the #fragileXtraordinary challenge of climbing to Base...

New Fragile X-premutation Service at St Mary’s Hospital, Manchester My name is Dr Iris Trender-Gerhard, and I am a consultant neurologist...