Would you like to help shape support for Fragile X families in Northern Ireland?

In this first instalment of our new series, Sally and Jim Irvine share this family update about sons Jamie (40) and Stephen (35)

Fragile X Society has teamed up with Freewills.co.uk to offer a free Will-writing service for our members.

IGPrare European study recently explored experiences of families when sharing their diagnosis with family members: what were the results?

Jo has shared this story of how her son, Dennis (known as Coach Deno) has coped with the death of Her Late Majesty Queen Elizabeth II

Jane Oliver has some ideas to help you manage the festive season, & a checklist of some common triggers of 'challenging behaviour' in adults

Would you like to network with other members and families in Wales at a support group? Let us know if you'd like to join our meetings.

Videos of the talks from our Conference 2022 at Birmingham are available to view on our YouTube channel. Click below to watch.

Anti-Bullying Week is coordinated in England & Wales by the Anti-Bullying Alliance. It takes place 14 -18 Nov 2022 & its theme is Reach Out.

Our Christmas Cards have arrived! Available from our online shop - please order early!

Today is International Fragile X Awareness Day. But what is life really like with Fragile X? Watch our special family stories to find out.

Caroline Pringle, Families and Professionals Advisor (Child Enquiries), shares some strategies for coping with the festive season.

Frank and John undertook a gruelling challenge at the weekend in the form of the 15km Tough Mudder North West, in aid of Fragile X Society.

For International Fragile X Day on 10 Oct, FraXI is creating a new video. Please send in a video clip about what Fragile X means for you.

Dasha Gold has secured a place in this year's London Marathon, and has chosen to raise funds for the Fragile X Society.

The Down Syndrome Act: a step forward maybe...But what about Fragile X? The recent Down Syndrome Act has led to an outpouring of strong...

Caroline Pringle, Families and Professionals Advisor (Child Enquiries) shares some information about this year's Anti-Bullying Week.

Jessica Bolton has secured a place in this year's London Marathon, and has chosen to raise funds for the Fragile X Society.

Katrina sent us this update and pictures from her family's summer trip to the National Fragile X Foundation (NFXF) conference in San Diego.

Laura has shared these great tips which helped her child cope with the recent hot weather.